Big Brother

This is the start of a beautiful friendship.

Last fall, T’s child and youth worker made the excellent suggestion to look into a Big Brother-style mentorship program for T.

I believe in mentorship and surrounding T with positive influences is important, because making friends is hard for kids with FASD.

Despite best efforts, we have yet to find a program that feels right and one that is FASD informed.

A few weeks ago, while celebrating the hubby’s birthday with my uncle’s family, my cousin J suggested that he and T hang out one on one.

When my family came to Canada when I was 8, I grew close to my cousin J and his sister; enjoying sleepovers, watching Power Rangers, collecting X-Men comics through our childhood.

My uncle’s family especially understands our FASD journey, because my cousin Tracy, J’s sister, has Down syndrome.

T adores his Uncle J. Our families hang out regularly and do a weekend trip during summers.

So this seemed like a natural fit and we agreed to give it a try.

Hiking on Beausoleil Island with Uncle J in summer 2018 when T was 3.

We were recently approved for government funding that we can use towards recreation (e.g. swim lessons), technology and books.

The funding also supports respite services and respite provided by family members is eligible.

The stars were aligned.

T’s first time trying to fish at age 2 with the hubby. His Uncle J took us on a boat out on Oastler Lake.

In special needs parenting, it’s important to try things out

The big visit took place at lunch today and T was excited, having counted down for two weeks.

J brought delicious chicken cutlet sandwiches for the hubby, him and I – while our selective eater made himself Eggo waffles.

Then T showed J where the cats hung out then they played Nintendo; I reminisced about the many hours J and I spent playing Nintendo as kids.

The hubby and I originally planned to duck out to do Christmas shopping, but I felt tired after recent events and spent quiet time upstairs by myself.

After an hour, we gathered to enjoy a delicious apple pie J’s partner had baked.

And just like that, 2.5 hours flew by and J headed off. But not before getting big hugs from T.

Who knows how long this will keep up. Instead of trying to plan every step ahead, like I often do, I’ll let this play out one step at a time.

Our families are seeing each other in three weeks and we invited J over during Christmas break to spend time again with T.

I emailed an update to T’s CYW. I know she will be pleased.

I had seen her earlier in the week at drop off and she told me T always complains that other kids have siblings while he only has cats. 🤣

I guess Big Brother will have to do, cuz the ship has sailed loooong ago on a sibling for T – along with what’s left of my youth.

Our first weekend trip with T and my uncle’s family to Oastler Lake. T curiously played with a fish that his Uncle J (leg pictured on the right) caught that morning. He was only 1 in this pic – how time flies.

No Day But Today

We said goodbye to a lifelong friend this weekend and I am reminded to never hesitate to live, love and laugh.

The universe works in wonderful ways, connecting people in seemingly coincidental ways.

In Grade 7 English class, I first became friends with Jenny because we randomly sat together in Mrs Piazza’s English class with one of her longtime friends since kindergarten and a friend I had recently met, having just moved to the area.

30 years later, the four of us found ourselves together in Jenny’s hospital room in palliative care saying our goodbyes in her final hours.

She spent the last two years bravely battling cancer. I did not write about it as I didn’t want her reading and being reminded about her pain.

When I think about recent challenges we’ve had with T at school – he’s been having wonderful days recently – I always pray for T to have the kind of friendships I have.

I’m so blessed with lasting friendships, especially this group of grade school friends.

Our group has grown from the initial four and I never take for granted how we’ve stayed in each other’s lives – through grade school, high school, first relationships and heartaches, going to different universities, entering adulthood, first jobs, marriage, children, roadtrips and camping, the death of parents and pets.

Growing up, my parents told me it’s important to have friends that are good influences – and I want that for T, especially as his disability will make him especially vulnerable during adolescence.

I’m so lucky our friends brought out the best in me and each other. We were the nerdy kids that cared about school, that pursued extra curricular activities like leading the school newspaper and yearbook, and we had mostly wholesome fun.

I spent most of Friday and Saturday with Jenny and a few friends – and those that could not be there called in or sent messages that we shared.

She was sleeping peacefully and the doctor let us know that hearing is the last thing to go during death and that she could still hear us.

We reassured her she was not alone and we reminisced. We were never the sentimental types – and she’d roll her eyes at that kind of talk – but we told her we loved her and that we’re happy she won’t be in pain.

We let her know that we will all see each other again one day and that we hope that she will have the home to herself she’s always wanted and the cats she never got to have.

At 6 last night, my friend and I noticed a change in her breathing and appearance, so we said our final goodbyes so her family could have privacy.

As we left the room, so her family could go in, I struggled to untie my hospital gown. I had tied the knot so tight.

I asked our friend to help and she struggled too. Jenny was gasping heavily and my friend and I burst out laughing through our tears.

I’m known as the clutz who inevitably does something avoidably stupid. I explained to her family this was one last “Stupid Ab.” moment for Jenny to enjoy.

When I got home last night, the hubby and T were out at the movies, and I opened a can of orange soda and bag of chips and looked at old photos I had not looked at in years.

Memories long forgotten but felt fresh as yesterday when I saw the photos: countless birthday parties, Halloween and horror movie nights, New Years Eve celebrations, Survivor finale viewing parties, holiday get togethers. Weddings and the arrival of kids. Little children now teenagers and their parents once preteens now in their 40s.

When I woke up this morning, I saw an email from her mother confirming she passed away shortly after 11 last night.

I’m still processing the news but if it’s anything the last year, a year of many losses, has taught me, is that life goes on all around us.

I just finished baking a strawberry vanilla cake for the hubby’s birthday and will take T swimming this afternoon – the waterslide at the community pool is back up.

Life goes on but you never forget the people in your lives and we reassured Jenny as we were leaving last night that we will never forget her – and that our kids will know her too.

Every birthday, she gave T a children’s book – and through her impeccable taste in literature, we discovered the wonderful British author Oliver Jeffers.

I told her T recently started to read the books out loud to me after years of them being read to him.

Jenny also had impeccable taste in music – loved UK acts – and in high school, she was obsessed with the broadway show, Rent – even organizing a get together for friends to catch the show in Grade 10 and gifting me the two CD album one Christmas.

Our friends were wondering what song to play while we hung out with her in her room as she slept and someone suggested Rent and I then suggested one of the best songs from the show, “No Day But Today.”

Listening to the song again, it really is an apt reminder that life is short and there is no day but today to live, love and laugh.

Photo at top: A birthday cake Jenny and another friend assembled for a joint birthday celebrated by our other friend and I in 2006.

Love and Karma

The energy we send into the universe is the energy we invite into our lives.

I found this belief challenged the past few weeks, because of T’s chaos – meltdowns, foul language, rude attitude, defiant behaviour at school.

It was draining – and at one point, I told the hubby I did not have the energy nor desire to keep doing this.

“When I was very young

Nothing really mattered to me

But making myself happy

I was the only one

Now that I am grown

Everything’s changed

I’ll never be the same

Because of you.”

– “Nothing Really Matters”

Hindsight is the best teacher, because reflecting while I write this post, I am reminded that I can and want to do this.

Parenting is about tipping the scale towards your child’s favour, as they draw upon your energy to grow.

Parenting a child with FASD can feel unrelentingly thankless, because you expend a lot of energy and get disproportionate chaos in return.

“Nothing really matters

Love is all we need

Everything I give you

All comes back to me.”

– “Nothing Really Matters”

The best parenting advice – and the hardest lesson I constantly re-learn – is to co-regulate with your child.

Responding to chaos with calm is the best way to deescalate a disregulated child.

I attribute the last few weeks to changes in his environment – higher expectations, less unstructured play, homework, new faces.

“Looking at my life

It’s very clear to me

I live so selfishly

I was the only one

I realize that nobody wins

Something is ending

And something begins.”

– “Nothing Really Matters”

T is an easy child to love but has moments when he is downright unlikeable.

When I have these feelings, I feel terrible guilt and sadness – and I try hard to remind myself to separate the child from the disability.

To forgive myself and to try again, because T is the best reason to keep trying, even if effort is not rewarded right away.

“Nothing takes the past away

Like the future

Nothing makes the darkness go

Like the light

You’re shelter from the storm

Give me comfort in your arms.”

– “Nothing Really Matters”

Recently, T’s CYW told us he needs to work on writing; one sentence journals won’t cut it in Grade 3.

So we started to work on writing during weekend learning and I asked his teacher for what she’s expecting – titles, transition words, details.

I’m not expecting overnight success, but I want to share his journal from this morning – I helped him organize his thoughts – about putting up the Christmas tree yesterday with the hubby.

I told him he did a great job and I am proudly sharing his work with his teacher and CYW.

Last week, his music teacher sent a nice email to let us know T got perfect (42/42) on his music test; she knew he practiced hard and was proud of him. I thanked her for the pick-me-up because he was having a rougher week at home and school.

Life with T reminds me, when I most need the reminder, that the energy we send into the universe is the energy we invite into our lives.

⁃ Madonna’s 1999 single “Nothing Really Matters” is one of my favourite songs. After never ever performing it on tour, she included it on her Celebration Tour, which kicked off in London last month, as the opening number! It’s worth the 25-year wait! Can’t wait to watch her show in January. It’ll be T’s first concert!

Smells Like Teen Spirit

A creature is growing in our home that is more horrifying than the supernatural or undead.

Saturday morning, I was enjoying coffee in the dining room when I heard the hubby say with alarm, “Oh my God, T, you’re turning.”

It was a full moon on Halloween weekend. Did we have a werewolf in our midst?

“What’s happening?” I asked curiously.

T screamed from his room, “My armpits stink! I’m turning into a teenager!”

I groaned. “Oh God, I need more coffee.”

T stomped downstairs with extra bounce in his steps. He walked towards me with arms raised.

“I don’t smell anything,” I said.

T then yelled, “PUT YOUR FACE CLOSER TO IT!!!”

I’ll do homework with him when he’s having a meltdown. I’ll clean shit from his underwear. But I ain’t willingly sticking my nose into his armpit.

This moment reminded me that life is flying by.

In a few months, T will be nine then it’ll be double digits and soon after, he’ll be a teen.

As a friend said on Facebook when I posted this amusing moment, it gets worse than armpits. “Just wait until the feet come in.”

Oh yes, I remember my teen years, wondering how shoes could smell like death.

Then I thought about the simple days when T was a toddler. I loved how he smelled after a bath and lathered in baby lotion.

I dread the teen years and how much harder they’ll be with FASD layered on top, if other parents’ horror stories are any indication.

But all we can do is to carve our own path. Do our best to prepare, seek support, and live day by day.

It reminds me to enjoy these childhood moments when T is begging us to play with him at the end of a long work day when all we want to do is rest.

To enjoy innocent traditions, such as writing letters to Santa or taking a coin from his piggy bank for the tooth fairy so T could deposit it back into the same pig.

We only get one childhood, so let’s enjoy it, because when we’re older, we’ll remember the good times and the hard ones won’t matter as much.

Halloween is T’s favourite time of the year after Christmas.

This weekend, T and the hubby carved four pumpkins; T did the designs and the hubby carved.

They also worked together to set up our front yard display – pictured at top.

While I made dinner tonight, the hubby assembled the treat bags we are giving out on Halloween, with a stash going to T’s school for his classmates.

After T finished supper, he asked to have a shower.

We praised him for having a super week this past school week and for being so awesome all weekend.

He really did – our hearts are full.

Then we let him go shower. Gotta wash those armpits after all!

To Teachers with Love

The influence of a great teacher is longlasting.

Thanks to Mrs Smith in Grade 3, who introduced us to daily journal writing, I developed an early start to expressing myself through words.

Tough but fair and kind teachers, like Mrs Ezer in high school, were whom I learned the most from.

I keep it touch with a few treasured teachers, one of whom is a friend – her son was the ring bearer at my wedding. I know she will read this. Don’t let this get to your head! 😆

I loved school and grew up with great respect for teachers. Both my parents were teachers; Ma was my school principal in the Philippines.

One of the best lessons I am learning as an adult is that learning is lifelong if you keep an open mind.

The school journey will be harder for T.

Due to FASD, an invisible disability that impacts up to 5% of people, T struggles with focusing in the classroom, needs supports to complete tasks, and making friends is harder because of challenges with regulation and impulse control.

T has recurring hard days in Grade 3 with staying focused, disruptive class clown behaviour, and getting in peers’ faces.

Some days, I want to scream, “What’s wrong with you!”

But I know the answer: it’s his disability and I need to adjust expectations and approach.

It’s easier said than done. I fall into self destruct mode more often than I’d like.

Thankfully, this year we have the continued support of his excellent CYW from last year, who helps him achieve good to great days.

This reminds me to think big picture.

His teacher is fantastic and we had a recent good in-person meeting to discuss T’s Individualized Education Plan (IEP).

I sense that she will push him, while also seek to understand, empathize and accommodate.

I like that she assigns homework. It is hit or miss with T. Some nights, he zips through it; some are meltdowns.

Regardless, I believe homework builds discipline and for T, it helps reinforce learning that he may have zoned out of in class.

I’m continuing to do light weekend learning with T; we read one book and practice math both days before he gets fun time, like swimming.

Advocacy and allyship are important and can be magic.

Last month, I did a deputation to our school board about increasing awareness and supports for FASD.

After I let T’s principal and CYW know about the deputation, the school did the following:

  • Consulted with us to add three books to the library about FASD and related subjects – Big thanks to CanFASD and FASD United for answering my email for suggestions.
  • Worked with us to arrange for a speaker from Surrey Place to speak to T’s class about FASD. His teacher is now arranging a visit from the FASD coordinator in early November.

As a parent that struggles daily with how hard this disability can be, I could not ask for more from a school – as I recognize that T is not the only child they have to support.

I sent a follow up e-mail to two school trustees who seemed receptive to our deputation to let them know what T’s school is doing – and said it is an example that more schools should follow.

Celebrate and amplify the successes

When I have a bad day with T, the ones that emotionally cripple me – and we had a recent streak of them – I remind myself T has many strengths; one of which is he’s a bright kid.

When we can get him to focus, he can pick up the concepts and get the work done.

Yes, I realize that not focusing is no small barrier.

So when he does well, we celebrate – like getting an A on his recent math test. Way to go, T!

I’m working with him on weekends on one of his Grade 3 goals: to learn the times table. He completed this table by himself over two weekends.

He didn’t do the 11s & 12s correctly so I let him copy a pre-populated table. He’ll get it over time!

Earlier today, for a job well done with his weekend learning, T and I went for bubble tea after our Sunday afternoon swim.

T had his favourite strawberry slush with popping bubbles and I had my usual grass jelly milk tea. I ask for half the sugar with our orders.

When I was younger, I wanted to be a teacher and I often pretend played as a teacher.

I was accepted into a teaching program for university but studied journalism instead.

Who knew all these years later, I’d become a pseudo homeschool teacher for T.

On most days, I enjoy it because the rewards of seeing T make his gains are heartfilling. On some days, I want to scream and tear my hair out, because he can be so frustrating.

So to teachers that do this every day, you have my utmost respect. And to the teachers that seek to understand, empathize, accommodate and bring out the best in T, you have my gratitude.

Photo at top: A 5-year-old during the “fun” virtual schooling pandemic days in 2020. He’s grown a lot since, in more ways than one!

Enjoy the Silence

I’m going to tell you a secret: It’s ok to say no, to put your needs first, to self indulge.

It’s become a morbid joke that when I plan self care time, something bad happens.

Christmas 2019: T got sick for a week.

Christmas 2020: Ma had a nearly life-ending stroke on the first day of my staycation.

Fall 2021: Ma got her autoimmune disorder and her body started attacking her muscles.

Christmas 2022: My sister passed away.

Summer 2023: I got pneumonia.

As I neared my three-day staycaytion last week, I dreaded asking what next: Zombies? Alien invasion? Asteroid?

Well, you’re not going to believe this – the hubby’s grandmother passed away!

The hubby kindly took T with him to the funeral in the East Coast and let me stay home for four days.

“Words like violence

Break the silence

Come crashing in

Into my little world.”

– “Enjoy the Silence” by Depeche Mode

It’s ok to say no

Part of me felt guilty for not going, but I had carved this time to give myself a needed break.

When I returned home after dropping them off at the airport, the silence and stillness forced me to confront my thoughts and feelings.

I have exhaustion and shades of PTSD from all that has happened the last few years.

I stayed in bed and on the couch all Friday.

I recently read a caregiver’s post that parenting a child with FASD is exhausting, because we have to be hyper vigilant at all times.

This is true of T from the second he’s up.

My body crashed on Friday, because it was allowed to finally lower its defenses for four blissful days.

I slept for like 20 hours, on and off, and woke up refreshed Saturday morning.

“All I ever wanted

All I ever needed

Is here in my arms”

– “Enjoy the Silence” by Depeche Mode

It’s ok to put your needs first

As any parent, and especially of a child with FASD, what I often crave is for someone to put me out of my misery silence.

Yes, silence.

Kids with FASD often exhibit hyperactivity, impulsivity, disregulation – and this can feel and sound loudly chaotic.

My latest struggles with T are the name-calling, the talking back, the screaming fits, and hair-pulling disregulated moments.

During these moments, my responses are often not the best – and it stems from accumulated fatigue.

When my reserves are depleted, my patience, empathy, even temperament go out the window.

Then the guilt of not having responded better eats at me. You can drown out external noise but the internal dialogue is inescapable!

People often forget the caregiver too needs to be taken care of.

So these rare four days to myself – my first genuine alone time since becoming a parent – was a gift.

“Words are very unnecessary

They can only do harm.”

– “Enjoy the Silence” by Depeche Mode

It’s ok to self indulge

Waking up to quiet stillness and having this carry throughout the day was strange but welcomed.

I filled the silence with music, TV or movies – and zero human conversation, despite kind offers from friends to hang out.

I watched complete movies, like Steven Spielberg’s The Fabelmans, without interruption or T loudly playing in the background.

I went to the gym to get my endorphin rush.

I soothed with cooking therapy, making myself buttery garlic steak on Friday.

I treated myself for meals I’ve been craving but didn’t have the time to go out and enjoy, like this delicious bowl of pho with bone marrow.

And my first Jollibee meal in a long time.

Jollibee is the only franchise to outsell McDonald’s in the local market. McDonald’s in the Philippines sells fried chicken and spaghetti to compete.

On Saturday, I followed live social media updates of Madonna’s opening night of her long-awaited Celebration Tour in London.

She opened with a fan favourite song she had never performed on tour: Nothing Really Matters. I’ve now watched this clip a thousand times.

On Sunday, my last day to myself, I slept in till Noon. It was a strange feeling, because even when the hubby lets me sleep in, I can’t fully enjoy it, because T is a buzzing boisterous noise in the background.

With 7 hours left before I had to pick up the hubby and T from the airport, I cooked a meal I’ve been wanting to make for a while, Jamaican ox tail, with Madonna playing in the background.

In keeping with the theme of slowing down, I used a recipe that required low simmering for 5 hours.

I’m pleased with the fall-off-the-bone results and it was nice to use spices and seasonings I often don’t cook with, such as rosemary, thyme and browning sauce.

We’re having this for supper during the work week ahead.

For the last supper, I grabbed takeout from a joint I’ve been wanting to check out: a hole-in-the-wall, down the street, once written about by a New York food critic in Gourmet magazine.

Check out this delicious spread of rice, one pound of crispy pork, veggies and soup. All for only $6!

I am very thankful for this gift that the hubby gave me. I love my child, my family, but sometimes, if I’m gonna be in this FASD parenting journey for the long haul, I need to give that love to myself too.

With my head feeling the clearest it has in a long while, my tummy full, my body relaxed, I headed off to the airport.

Horsing Around

The best things in life are not free.

Thanksgiving a year ago vs today, the dinner table is cozier and I am reminded how life flies by.

Friday was a PA Day and I took T to a fun and free activity organized by Surrey Place, the amazing organization that has supported our family since he was 18 months, when FASD was just a prognosis; formally diagnosed in 2022.

The event was a chance for caregivers and kids with FASD, 8 to 15, to hang out in person, after caregivers spent the past year getting to know each other through a virtual group.

The two-hour get together consisted of three parts: grooming horses, a picnic then a hike.

During breakfast at home, I mused out loud, “We’re putting six kids that have challenges with hyperactivity, attention, impulsivity and regulation in a room with horses. What could possibly go wrong?”

T quickly piped up, “I’ll get kicked in the butt.” 😆

But the activity went well. T was anxious at first, but the patient staff got him to brush and groom the horse.

I often read about equine therapy as an effective wellbeing tactic for kids with additional needs and I could see how it was indeed a calming activity.

And T didn’t get kicked in the face! If you set the bar low, you exceed your expectations! 😂

Afterwards, the kids enjoyed a picnic, thoughtfully prepared by Surrey Place staff, then played with each other in the open field, all bursting with kinetic energy.

It was T’s first time knowingly interacting with other kids with FASD and I felt peace and camaraderie as I watched similarly tempered kids enjoying being themselves.

We ended the outing with a short hike and I enjoyed talking to the other caregivers. I felt like we got each other and it felt so refreshing.

T is already super excited about the next meetup in December; a visit with therapy dogs. 🐶

Life as a parent of a child with FASD is challenging and on most days, it beats the crap out of me.

I reflected a lot the past week about the saying “the best things in life are free.”

They really aren’t.

Even love and life itself come with a cost.

When we open up our hearts to love, we also open ourselves up to heartache and grief. But we risk it all to receive love in return.

When we choose to live life fully, we open ourselves up to disappointment and failure. But we risk it all for joy, adventure, laughter and connection.

This is what being T’s parent is all about. We face the hardships head on, because of the sweet rewards that come with the challenges.

As I’m reminded this Thanksgiving, the best things in life, such as family, friends, health, community and the outdoors, are immeasurably priceless.

Cooking for the Soul: A Second Helping

In Chinese culture, we eat noodles during birthdays as it symbolizes long life.

When I watch T have instant noodles or spaghetti, two of the handful of things our selective eater will have, I joke it’s my life force he’s slurping away.

I often write about the importance of self care in the marathon journey of special needs parenting – be it diet, exercise, proper sleep, alone time, hobbies, connecting with loved ones, counseling.

Cooking is an activity I enjoy during alone time, picked up during the pandemic.

It’s fun, low pressure and if the meal doesn’t go to plan, it comes out later the same way as a Michelin star meal.

Thinking about my next cooking therapy adventure provides mental respite in my busy day.

There are so many recipe inspirations, whether they’re bite-size videos on Instagram or wonderfully-detailed blogs.

I also inherited cookware – such as a claypot and a steamer – from Ma after her recent departure, as well as nice plate and bowls from my late sister.

Browsing supermarket aisles for inspiration is also fun, such as my recent outing at Asian grocer T&T and daydreaming in the long ramen aisle.

Look at all that ramen options! We recently tried the Tonkotsu ramen with black garlic oil. Yum!

I also started to learn about plating techniques. According to top chefs, I can charge my family more for supper if it’s nicely plated. 😆

T gets annoyed when I’m in my cooking headspace, because it takes away from our Everest time. “Stop taking pictures of food,” he’d scream.

Maybe one day he’ll join the fun. But I’m honestly ok if it’s just time to myself.

Here are a few recent cooking therapy adventures:

Lamb and arugala salad. My original plating had three pieces of arugala and two dried cranberries but the hubby said it looked pretentious so I added more arugala. 😂

Lamb curry with garlic naan. The naan was store bought and I brushed it with butter. I hope to bake fresh garlic naan one day.

Spicy tan tan ramen was so satisfying to make. Who knew sugar free oat milk was key to that creamy savory spicy broth?! I’m also happy I’ve learned to make “ramen eggs.”

I made this French onion Salisbury steak with a pouch of onion soup mix long sitting in the pantry. A pleasant surprise! It also inspired me to learn about plating, because this looked messy.

Steamed egg and shrimp was so easy to make, using my mom’s steamer, and went well with rice!

Another steamer recipe – ginger scallion chicken.

Chicken congee is my go-to comfort meal. I garnished it with fried shallots, commonly used in Vietnamese cuisine, and chili oil.

Hot and sour soup. It was fun to demystify the process of how to make egg ribbons.

I made this Mexican-inspired dish with a pouch of taco seasoning also long sitting in the pantry.

Caprese salad is one of my fave salads.

Spicy peanut noodles.

Spicy peanut noodles topped with crushed nuts.

Lemongrass chicken dressed with green onion oil.

Curry cauliflower dressed with curry yogurt.

Spicy green beans. I used a lot of dried red chili and Sichuan peppercorn.

Cypriot potatoes garnished with dill and dipped in a lemon honey yogurt sauce. I learned that cinammon can be used for savory dishes!

Other Cooking Therapy Adventures

Uplift through Testimony

There is power and purpose in sharing stories. One voice can join a chorus to make a difference.

This week, I joined a director from the Surrey Place to make a deputation to our school board, the largest school board in Canada and one of the largest in North America.

Our goal was to raise awareness about FASD and to advocate for more awareness, supports and training for students and staff – including commemorating FASD Day every September and recognizing FASD as an exceptionality.

We had been planning to do this since Spring and our last two tries were postponed as the relevant committee meetings were cancelled.

It worked out for the best as the meeting we deputed at was the one attended by all school trustees, which are citizen-elected positions.

This was my second time making a deputation; the first was in January 2020 after T’s specialized program was cancelled due to budget cuts.

As a special needs parent, it is essential to be your child’s advocate.

It is exhausting and can be demoralizing as you often wonder if your voice is making a difference.

I believe it does. And when joined together with a community chorus, the message can be amplified.

I walked into the delegation room and immediately felt nervous.

We arrived early to scope out the space. The hand emoji is pointing to where I sat and spoke.

It was a different room from my last deputation; larger, double the member seats and two large screens displaying members joining virtually, meaning I was being broadcast online.

I do public speaking for work, but the stakes were personal, so I felt antsy. I had a busy day at work so I didn’t get to practice.

I reminded myself I only had to speak for 2.5 minutes and I thought about T, the hubby, his CYW and school, and it calmed me down.

The meeting started and we were up first; the Surrey Place director and I had 5 minutes total.

She went over by a minute and made good points. I lost 40% of my time and improvised on the spot by skipping over chunks of my speech, while keeping an eye on the countdown on the big screen. I finished with three seconds to spare!

The reaction from the trustees reinforced why it’s important to advocate for FASD.

I thought we’d be met with crickets but we generated good discussion.

One trustee asked if we think it should be up to the Ministry at the provincial level and not the Board at the city level to determine if FASD is an exceptionality.

This is the frustrating ping-pong game politicians play to pass the responsibility.

So I said the trustees and board can advocate to the Ministry. What I wished I said, in hindsight, was the board can demonstrate leadership by setting a good example for other boards to follow.

Another trustee asked what is the impact of having a student with FASD in the classroom on other kids.

I responded by reminding him the board has an inclusive approach to education and that with the right supports, students with FASD can succeed.

Another trustee asked what is it that we hope to achieve with awareness.

I responded by saying that with awareness, we can build understanding and empathy. I shared that it wasn’t until 7 years ago that I knew what FASD was and I am often reminded just how little awareness there is of this invisible disability.

With awareness, training and supports, teachers can provide the right approach for students with FASD to help them thrive.

The pleasant surprise came when one trustee shared that in February 2020, a month after my first deputation, a motion was made to recognize September as FASD Awareness Month.

She was the co-author of the motion and I politely let her know that as a parent, I have not seen any action from the board to recognize this month and she agreed they need to do better.

As we walked out after our deputation, another trustee approached us and let us know that a message is sent to board staff during FASD month.

I let her know the message needs to trickle down to school staff, parents and students – and that schools need to visibly recognize this day – for this motion to have meaningful impact.

And so, the advocacy continues.

The amazing FASD coordinator at Surrey Place had gathered 30 statements from parents, students with FASD, service providers and medical experts and provided a package of printed statements to each trustee at the meeting.

We will follow up with the two trustees whom we agreed came across as allies to continue the advocacy conversation.

I’m not naive enough to think a 5-minute deputation will change the world.

But every contribution counts towards a larger whole.

If we just helped a few light bulbs go off in that room then I consider it a job well done.

And I think we did.

Transcript of My Deputation

Here’s a link to an edited transcript of my delegation. I edited identifying details out for privacy reasons.

The Power of Yet

T asked the lifeguard if he could try the deep end test. It was his first-ever attempt. Would he make it?

I thought about this recent outing at the community pool, as it’s goal-setting time for the school year.

This year, I love how T’s teacher included the kids in the process, using the Power of Yet model.

Growth mindset is an important message for kids to learn and I appreciate how schools have shifted towards this approach in recent years.

When viewed through the eyes of an individual with FASD, and their caregivers, it is a powerful reminder that just because you can’t do something yet, it doesn’t mean it’s not achievable one day.

T gets easily frustrated when he stumbles – and in turn, it is frustrating for us as his parents – so a shift in mindset can be beneficial.

I’m aware that not everything is achievable with a positive mindset, but everything is worth a try.

T’s CYW shared proudly in her daily log that T set his own YET goals for the year.

Y (You)

  • Making friends
  • Keep hands to self
  • Sharing activities
  • Taking turns

E (Education)

  • Learn times table
  • Writing neatly
  • Spelling hard words

T (Technology)

  • How to log in on the laptop
  • Researching
  • Zoom with grandparents

After reading them, I too felt proud.

The hubby and I are also setting goals for T, through the annual Individualized Education Plan process.

The IEP is a tool the school creates to provide accommodations and supports in the learning experience to maximize T’s success.

Parents can provide input towards the IEP by completing a questionnaire and a consultation meeting with the teacher, who drafts the IEP.

It is a legal document that schools are accountable to follow.

This is our 4th IEP and it’s interesting to review the previous year’s document to see what still applies; many of them do, including highlighting his challenges around hyperactivity, focusing on and completing tasks independently and regulation.

We also make sure to highlight his many strengths, including: his bright, funny and caring nature; his aptitude for sports; and his desire to do well. We emphasized that while T may have challenging moments, experiencing his successes together can be immensely rewarding.

School is often stressful for kids with FASD and we see this in T. The days are long, there are many demands on him – and at the end of the day, he’s often had enough and is often moody and more prone to meltdowns.

We get it. It’s a work in progress. Annoying and hard as hell to experience, but we get it.

We try to provide opportunities to destress through things he enjoys – park time, biking, swimming and swim lessons on weekends.

I continue the weekend learning with him but keep it fairly light. We read one picture book together and practice math drills.

We need to work on his reading stamina and interest but his growth is undeniable. And it’s wonderful to see him start to learn the times table through practicing with flash cards I made using dollar store index cards.

Question on the front, answer on the back.

The Power of Yet is a good reminder that every day or every moment doesn’t have to be a home run or gold medal worthy.

The try is often the most important part of the learning journey – and to break it into smaller steps.

And during this recent weekend’s deep end test, T tried valiantly. His strokes and breathing technique were sloppy, he paused longer than he should’ve at the end of the first of two laps, and he didn’t finish his second lap – but he was close.

So he didn’t pass.

But I saw how determined he was and praised him for a solid first try at a difficult test.

I told him with utmost sincerity and belief that with constant practice, he will be in the deep end by next summer.

Fried Spam with Rice

Like many immigrant kids, I’ve experienced many “smelly weird” school lunches packed by Pa.

But I loved them all and the one I looked forward to most was fried spam on a warm bed of rice.

I would inhale the luncheon meat, its greasy goodness soaked up by the rice.

This weekend is Pa’s death anniversary and I marvel at how quickly 15 years flew by.

Pa was calm, patient, even tempered – qualities I often lack during the eye of the storm of parenting a child with FASD! 😆

My memories of Pa are about the small things that feel bigger today: waking up first in the house to prepare our lunches, prioritizing our academics, role modelling healthy eating and living.

If it wasn’t for Pa who insisted our family immigrate to Canada so my sister and I could have a better life than in the Philippines, I would never have been T’s parent.

All these years later, I still recall weekend walks in our Philippines neighbourhood with Pa. I don’t remember specific sights – but I remember the warm feeling of walking side by side with Pa.

Life moves in full circles and with symmetry, guided by a force bigger than us.

During our bike ride this morning, T wanted to venture out to the main roads – which we’ve never done before as we’ve always kept to the safety of our neighbourhood streets.

Thinking about Pa, I took a leap of faith and said, let’s go beyond our boundaries – and gave T clear directions to stay on sidewalks and to stop at every corner, stop sign and light.

T wanted to bike to our local supermarket, which we usually drive to, and we were out for over an hour and biked over 10 km.

T did an amazing job and followed instructions.

I would like to think that years from now, he will remember the feeling of these bike rides too.

When we got home, I made the hubby and I fried spam and rice for lunch, while T had KD.

I sprinkled nori on top and enjoyed the meal with chili garlic sauce on the side.

We then went to the first session of T’s fall swim lessons. Now in level 4, he has improved so much since starting lessons last Fall.

We then visited Pa, bringing him new flowers, as we do every death anniversary.

When we got home, the hubby and T baked gingerbread cookies, using baking mix T picked up during our Friday night grocery run.

We started the gingerbread army with these three.

Tree of Life

There is a special tree, that sways to the side like a painting, that serves as a route marker of time.

Killbear is special because it is the first place we camped together at as a family.

It is the first family vacation we took during the pandemic and we were so excited to get back out into the world.

This moment of T and I looking out into Georgian Bay encapsulates so many emotions about life.

It’s family tradition to take a photo of T with the iconic Killbear tree – a white pine that is over a century old – one we’ll continue as he gets older.

Here he was in 2016 at 18 months…

… in 2017 at 2 years…

… in 2020 at age 5…

… and our recent camping weekend at age 8.

I often think how fun it would be to have a photo one day of an adult T with his own little one – a full circle moment.

But if you look closely, there is now a beam supporting the tree.

A sign on the beam reads: “This tree has been the symbol of Killbear for decades. Sadly it is in decline and needs support. Please do not climb.”

When I first saw this, during our early Saturday morning hike, my excitement turned into sadness.

The tree’s state reminded me about life – and to enjoy every moment, even the declining period.

I thought about how wonderful it would be if everybody rallied around our most vulnerable – in T’s case, individuals with FASD – with the same fervor of support as they did this tree.

Life would bloom with more possibilities.

Who knows how much longer this tree will be around – maybe it won’t be here at our next visit.

But there’s no point worrying. We only have the here and now.

And even if it’s a stump one day, we’ll still visit and treasure this spot for all that it represents to our family.

Community Rocks

As the sun descended over Georgian Bay, crowds started gathering on the rocks by the water.

It was our second night of camping at beautiful Killbear and we were enjoying an after dinner walk to soak in our final evening.

Sitting by the rocks to watch the sunset is a tradition and I love how calming it is.

It made me think about communal experiences that bring people together, like parties, school, church, concerts, parades, fireworks, and so on.

There is something beautiful about people co-existing in a shared experience, everyone drawing their own meaning from the moment.

Today is FASD Day and it is celebrated annually on September 9 to raise awareness about Fetal Alcohol Spectrum Disorder, an invisible disability that impacts 3 per cent of the population.

The hubby, T and I have been on the FASD journey for over 7 years – each day bringing new successes, challenges and lessons.

One key reason we’ve been able to find success in the daily chaos is community.

These include direct supports such as our family and friends, school staff, community and specialized services such as the amazing Surrey Place and Community Living.

Indirect supports include online support groups and advocates whose work I admire from afar.

And of course, the amazing WordPress community who enrich my “free therapy” blogging with your kind and supportive comments.

A fellow Canadian blogger sent me a kind email this week to show his support for the parenting journey.

He drew parallels to his experience working with individuals with FASD:

“On their best behaviours they were two fabulous human beings, but they could change in seconds into two handfuls of stubborn button- pushing assholes that I could not control.”

Not everyone with FASD is like this, of course, but I had quite the chuckle, because he described T at his hardest moments.

Communities can form around anything – like this gorgeous daily sunset.

I am appreciative of the advocates who’ve built communities around FASD that has enriched my family and parenting.

In turn, the hubby and I have spent the last seven years doing our best to build and advocate for community around T.

We are protective of this community.

I recognize that more work to advocate, raise awareness, reduce stigma needs to be done – and I hope to do my part to grow the FASD community.

Communities thrive when there are moments to come together to rest, reflect and rejuvenate.

Bare feet on smooth rocks, cool comfortable breeze, sitting silently next to each other, calming swishing water.

T spent most of his time playing with boys as they gathered around a puddle, trying to catch a frog.

Then a big fluffy dog caught his eye and he asked the owners if he could pet the dog – and well, they got along beautifully.

After the sun dipped below the tree line on the horizon, the crowds dispersed.

Then we headed back to our campsite to start a fire.

Shooting Stars

Night hikes are a camping tradition and when darkness fell, we excitedly set off for the rocks.

After our spontaneous sunset swim and jumping off beautiful rocks at Killbear, we roasted marshmallows and made s’mores at our campsite.

T was now sugared up on s’mores and a watermelon slush from dinner.

He was bouncing off the walls with excitement for the hike – climbing trees and jumping off a boulder and picnic bench on our site.

It was past his bedtime and he was overtired and getting mouthy when we asked him to calm down.

But we knew these hikes happened once a year, so we changed to long sleeves, put on bug spray, armed ourselves with flashlights and set off back up the rocks.

We passed by the dark beach and it was calming to hear the water and see silhouettes of people enjoying the evening.

It was more challenging to hike up the rocky inclined path in the dark, navigating the jagged or slippery rocks and tree branches and roots.

But the view at the top was well worth the trek – beautiful Georgian Bay lit up by a full moon.

With no light pollution that we often have in the city, the stars were in clear mesmerizing view.

We lied down on the rocks and looked up at the sky.

T watched the stars for five minutes cradled in the hubby’s arms then decided he had enough.

He got up and started running around, fiddling with his flashlight, getting light in the hubby’s face – annoying him as he missed the two shooting stars that I saw.

Sitting in the dark, I let my mind tune T out and I focused on the gift of this moment.

It’s been an interesting journey parenting T and there truly have been some hard lows – moments when my mind went to truly dark places.

But the blessing of this night reminded me that we can let darkness consume us or we can focus on the bright stars.

I made two wishes with the two shooting stars I saw. And no, it was not to take T’s FASD away. It’s a part of him and I’ve made peace with that.

I wished for T to grow up happy, healthy, independent and self sufficient, successful, and to be surrounded with light, love and friendship.

I believe this wish is within reach.

T can be a real pest and he drives us batshit crazy often – but he is good at his core.

On our hike up and down the dark rocky inclined path, T had no problem zipping ahead of me. I am a slow hiker as I love to savour the moment.

Every few moments, T circled back to me to shine his flashlight on my path. “Here you go, so you don’t trip.”

Often times, I think it’s the hubby and I that’s shining a light on this kid’s path in life – but really, he also illuminates our lives with his bright light.

Leap of Faith

We were racing against sunset as we hiked up the rocky hill to get to the cliffs to jump into the bay.

It was our first day camping at Killbear and we had just finished dinner. We had decided we would do cliff jumping the following day, but T was insistent, so the hubby and I decided, why the hell not.

We quickly got changed and hiked towards the cliff as the golden hour sun bathed the rocks, trees, beach and scenic Georgian Bay.

Jumping off these rocks is tradition at Killbear, one the hubby and I first discovered with friends over a decade ago and one we were excited to introduce to T when we first took him camping at age 1.

At age 5, in 2020, he leapt off the rocks for the first time, quite fearlessly.

I thought the three of us were the only ones dumb enough to be doing this close to night, but the spot was still busy.

I love that this is an all ages activity, parents passing down this past time to their children, older kids coaching younger kids, everyone patiently waiting their turn and cheering others on.

The hubby and I quickly jumped in and the cold refreshing water woke us up faster than coffee.

Surprisingly, T hesitated… and hesitated… until the sun went down and we had to call it a day.

He said he wasn’t scared of jumping, but rather, the water looked very cold. No worries nor biggie.

We went back the following afternoon, but the bay was like a wave pool – the strong winds had gusts up to 50 km per hour! – so we enjoyed watching stronger swimmers jump instead.

It was on Sunday morning, before going home, that we headed out for an early morning jump – our final outdoor swim for the summer.

The water was calm and T was determined and, with minimal hesitation, he jumped in.

My heart soared with him.

T first made this jump before at age 5, but it felt different this time.

It was the three-day build up, the determination to do it despite his initial hesitation, and it was the steps that took us there.

Life with a child with FASD requires us to be regimented with structure, as routines help our often impulsive kids build predictability, ease transitions and minimize meltdowns.

Disability or not, adults fall into set ways, our brains wired to follow structure and avoid risks that deviate from our patterns – because life experiences teach us to know better.

And on most days, who the hell has the time and energy when we’re just trying to make it to the end of our day in tact.

But we can all learn from kids like T, to live in the moment… to be spontaneous.

T may not have made that jump that first evening, but going up to those rocks treated us to an unexpected time, as we enjoyed a glorious sunset by the cliffs.

These painting-like views will be cemented in my mind for quite some time.

They remind me of what’s possible when you just give in and take a leap of faith.

Our Budding Influencer

“Hi guys,” T says sweetly and excitedly to his phone, on video record mode, to his imaginary followers.

He goes on to narrate what he’s doing, emulating the online influencers and livestreamers he enjoys watching, like Ethan Gamer.

It appears we have a budding influencer.

T started doing this at his grandparents’ cottage during our visit earlier this month, using the hubby’s old phone that he inherited, and his videos are usually of him touring our home, playing with toys, or pretending to cook.

It’s innocent and adorable and I’m not too fussed, as the videos are not posted or live-streamed.

I recognize T was born a digital native and this is the world he’ll mature into.

I think about how FASD will influence his life as a digital citizen – and am mindful his impulsivity may increase his risk of trouble or danger.

I also worry about T growing up in a world where social currency is measured in likes, views and followers – and the effects that may have on his self esteem and mental health.

That’s why I’m glad schools teach digital and media literacy starting at an early age – and we will have conversations with him about digital safety and citizenship as he gets older.

The hubby and I supervise his use of devices – including no data on his phone, parental controls and he can only use phone on weekends during the school year.

We recognize the benefits outweigh the risks.

Seeing and hearing him make his videos give me joy. I think about how he’s building digital skills, creativity and ways to express himself.

I hope this will help him grow his confidence as a public speaker at school.

And who knows, when he’s older, maybe he’ll get into hobbies like podcasting or even make a career out of digital content creation.

I am, of course, getting far ahead of myself. For now, I will enjoy this for what it is. Innocent fun.

When T got home tonight, I was nearly finished making his dinner. He quickly looked for his phone then started to “stream” to his followers.

At one point, T was talking and I responded then he quickly retorted, “I’m not talking to you. I’m talking to my subscribers.” 😆

Oh this kid.

And now, I must end this post because I promised him we’d go to our basement crawl space to start packing for our upcoming weekend camping trip.

And of course, he wants to share the experience with his “followers.”

“Ok guys,” he says excitedly to his phone. “In one minute, we’re going into the crawl space with Papa.”

I surely must go. This kid is on my case and nagging me. Have a good night, all!

Catch and Release

Kids catching lobsters washed up on the beach gave me a good reminder about abundance of gratitude.

On the second morning of our recent visit to T’s grandparents’ cottage, we went for a walk by the beach, an activity T enjoyed several times a day.

We stumbled upon three boys carrying buckets and excitedly catching lobsters!

In the 19 years I had visited the cottage, this was the first time the hubby and I had seen such a thing – and we guessed it was a combination of the high winds the previous day and low tide.

I thought this is what childhood summers are all about. It felt joyful and T (pictured below on the left) excitedly inserted himself into the play.

The hubby and I got into it too, although he went into the water and I stayed close to shore. 😆

The kids made it look so easy, as we didn’t have any luck finding a single lobster.

But we did encounter our inner child.

The kids caught five lobsters – tiny, a pound each, but nonetheless exciting – and their parents asked them to release them back in the water.

This moment made me think about how fleeting life is – the good, like joy and success, and the bad, like stress and anxiety.

Very few things are truly permanent nor ours to keep – regardless of how much we want to hang onto the moment and bottle it up forever.

It’s a reminder to weather the rushing rivers that always lead to calm waters.

And to be present for the good stuff. To enjoy the experience then let it go – and have faith there are more good times ahead.

Speaking of fleeting, T ran back to the cottage to pee and that was the end of lobsters for him.

And of course, I didn’t know it at the time, but I would get very sick the following morning.

But before all that, and later that night, T and I had fun spontaneously digging up a few dozen quahogs at low tide sunset.

I do so wish I could bottle up this moment forever – but it was what it was and I look for these moments throughout each day.

They are often small – like our bike rides after dinner, T reading with me, swimming at the outdoor pool, or this rainy morning when T got up early and gave me a warm good morning hug.

This past Sunday, I got quite cranky in the car, because we were late for a family lunch – avoidable, but some people *ackem* have issues with getting ready on time.

Trying to diffuse the snark between the hubby and I, T spoke up and told me, “Think of the happy stuff and ignore the bad stuff.”

This, coming from a kid who often gets escalated, cranky and angry, was quite rich.

But I did smile, calm down and hung onto that unexpected feeling of joy and pride.

Then I let it go.

Yummy family lunch at Vietnamese restaurant to celebrate cousin’s birthday.

All That We Leave Behind

In the end, it’s about memories and we hang onto photos and things that remind us of loved ones.

In a year of losses, our family experienced another loss – Ma moved back to Philippines at the end of July.

We knew for over a year this day was coming – it was delayed due to my sister’s illness and death – but it was still hard.

My family and I spent time in July helping Ma declutter her apartment and pack.

Ma and I are minimalists, so deciding what to donate or dump was easy.

It was still an effort getting Ma to focus, as she waited until the last minute to start.

At one point, I asked Ma to get off Facebook and focus. She replied, “I haven’t posted in days and don’t want my friends to think I’ve died.” 😂

We keep the memories

The hubby and I decided to keep a few things:

Photo albums

These albums predate my existence and contain priceless memories. I will guard and treasure them.

Artwork

This Chinese artwork hung on our family’s living room and it reminds me of Pa and Ma.

Kitchen Supplies

Ma had cute kitchenware that made yummy dishes over the years. I now have my first clay pot and one to remember Ma by.

Loss is harder when you experience it as a child and as the parent of a child.

Ma left on a Wednesday evening and we dropped by on the Monday and Tuesday.

T likes to tease Ma. He often smacks her on the butt – and while Ma does think he’s a handful, she loves him.

Near the end of our visit on the Tuesday, the reality sunk in and T started crying.

The poor kid has experienced so much loss lately and my heart ached for him.

On Wednesday night, after work, we dropped Ma off at the airport and said our goodbyes.

A few days later, the hubby and I emptied her apartment. I had a 39 fever – this was when my pneumonia likely started – but we still had to do the heavy lifting.

It’s funny how life flies by – one minute they’re there and the next, they’re not.

Food brings comforting memories

It’s been three weeks since Ma left and we try to video chat frequently.

We now have an incentive to visit Philippines and hope to do so next year. It’ll be T’s first visit and the hubby and my first since 2010.

I’m not sure how we’ll survive the 16-hour flight with T but life always figures itself out.

This evening, I made chicken claypot rice using Ma’s claypot and this Wok of Life recipe.

I’ve always wanted to make this comforting dish – and it was indeed comforting, in more ways than one.

Main ingredients are jasmine rice, chicken thigh, dried shitake mushroom, dried black fungus, dried lily flower and an assortment of spices and seasonings. Garnished with green onion and dried shallot.

Photo at top: Swimming at scenic Elora Quarry at the beginning of summer in June.

Has To Be

How do you best explain the concepts of faith, God, heaven and angels to kids?

During bedtime on Monday, T said in a panic that he wanted to live forever and was afraid of dying because “what if angels aren’t real?”

Since his Auntie, my sister, passed away after last Christmas, T found great comfort in the belief that she is an angel, sitting on a cloud.

The hubby doesn’t believe in God and I do – and we peacefully co-exist with our beliefs.

I have a love-hate relationship with religion. When I was a teen and came out to my church, the pastor said I needed to see a psychologist, because being gay is not normal.

That turned me off religion for many years but as an adult, I believe in God and that faith brings comfort and healing.

I separate faith from religion; the former is a personal journey, whereas the latter is organized and often creates conflict in the world – and I have no patience for that.

“I know there’s someone out there
Waiting for me
There must be someone out there
There just has to be.”

– “Has to Be” by Madonna

As faith is a personal journey, I believe in helping kids ask questions to guide them through their journey, including learning about different belief systems and resisting the urge to tell them what to believe.

I’m not sure what precipitated T’s recent panic but he said he did not want to die, because he’s worried he won’t become an angel, as he’s not sure if they’re real or not.

It was late, I was tired, and I was not sure how to answer the question. So I asked him if he believed in angels, because that’s what’s important.

Then he did something that just made my heart melt, because it was so adorable.

He got out of bed, went to our room to ask Alexa, our smart home device, if angels were real. He said, “I hope she tells me they’re real, because I will cry forever if they’re not.”

God bless Alexa and her astute response was along the lines of people’s beliefs will differ based on their religion.

I thought it was a brilliant answer but T was not fully comforted by the answer. As of today, he’s still exploring this question.

And you know what, that’s ok, because it’s what makes being human so beautiful – our continued search for meaning and something bigger than us.

The following night, last night, he said something that was so touching. He said that if he became an angel, he would come down to Earth and wrap his feathers around us so we could be safe.

Life is filled with many unknowns. But I believe in this wholeheartedly: This kid drives us nuts, he has a sailor’s potty mouth – but despite his disability and challenges, he is pure and good at the core.

I have no doubt he will be a wonderful angel one day – hopefully not for a long while.

Happy 65th birthday today to my dear M! We were supposed to attend her concert last Sunday but it got rescheduled to January due to her illness. It worked out for me as I was on the mend from pneumonia. Talk about divine intervention!

Rain or Shine

When things don’t go as planned, like pneumonia ambushing vacation, I look for the silver lining.

We had a nice 10 days visiting T’s grandparents in New Brunswick, despite me being ill for most of it.

On our third day, I started to feel nauseous, had shaking chills and developed a fever – which reached a scary 40.3.

I was in bed for three days and coughed up bloody mucus and felt out of breath.

I went to the ER and the doctor confirmed it was pneumonia and started me on antibiotics.

I felt guilty that my illness restricted our plans but in hindsight, it ended up being a blessing.

The hubby and T spent one-on-one time with T’s grandparents – including them taking T to the park and McDonalds and the group going for drives.

I got my wish to take long naps during the day, with the saltwater breeze nourishing my soul; next time, I’ll specify I want to enjoy naps without being sick!

While we didn’t get to go out for hikes or swims, we enjoyed many walks by the water, bike rides by the cottage, and played cards – my in-laws introduced me to a super fun game called Five Crowns.

I started to feel better on the last two days of our trip, so of course, those days rained all day. So we took T and his cousin A to the movies – and spent the rest of the time relaxing at the cottage.

T and A kept busy building forts (below) and watching YouTube videos together; it warmed my heart seeing them deepen their bond.

The last day on our trip was the hubby and my 14th wedding anniversary. We celebrated by going for a short drive to fill up gas for our drive home. 😆

The rain stopped in the late afternoon and we enjoyed a family walk on the windy beach.

The hubby really stepped up while I was sick – taking care of T, measuring my temperature and giving me Tylenol every four hours when I was battling the fever, and sitting with me in the ER.

In sickness and in health, rain or shine – the vacation may not have happened the way we imagined, but it was perfect the way it happened.

T, being T, kept it real. When I finally emerged from being in bed for days, he told everyone, “Papa is so lazy. He just sleeps all day.” 😆

And an unexpected gift, I’ve reached my weight goal – and even got my jawline back! 🤣

The entire time I was sick, I had no appetite but I kept thinking about pork bone soup from my favourite Korean restaurant Owl of Minerva.

It motivated me to get better and through the 16-hour drive home.

When we arrived home Thursday night, I picked up takeout from Owl. It was well worth the wait!