Family is Forever

Eight years ago today, we got a call from Children’s Aid Society. We were matched with a child! It was a Thursday evening and the hubby and I were shocked, because it had been seven years since we had started the adoption journey. We had given up hope we would be parents. They shared T’sContinue reading “Family is Forever”

Sinking Ships, Rising Hearts

The heart does go on and on. T’s latest obsession is the Titanic, quite the step up from Paw Patrol! This was likely inspired from YouTube, as he spends lots of time watching videos about the Titanic and other famous shipwrecks. He loves to draw pictures and pretend play with great imagination about the doomedContinue reading “Sinking Ships, Rising Hearts”

Nature is Healing for Neurodiverse Kids

A beautiful sunny t-shirt weather Spring Sunday gave T and I the recharge we needed. After breakfast, we practiced reading two chapters in his latest book then headed to one of our favourite nature spots: Rouge Park. I feel blessed for this urban oasis near our home. I appreciate the government recently adding a boardwalkContinue reading “Nature is Healing for Neurodiverse Kids”

Open to Feedback

Being able to receive and apply feedback, as hard as it can be to hear sometimes, is key to growth. In February, halfway past the Grade 3 school year, the hubby and I had our teacher conference with T’s teacher, CYW and the school’s special education coordinator. We discussed T’s areas for improvement: reading, writingContinue reading “Open to Feedback”

Turbulence

An overzealous adult crossed the line with our neurodiverse son and awoke the Papa Bear in me. While waiting at the airport for our early morning flight home after our March Break trip a few weeks ago, T was disregulated. He didn’t get a lot of sleep and he was short tempered, hyperactive and mouthy.Continue reading “Turbulence”

Down into the Depths

In your lowest moments, you find yourself again. We enjoyed a cave exploration excursion during our March Break family trip to Mexico. Our first activity was to rappel down 7 storeys into a small cave. T went first. As he was lowered by the guide, down a small hole that quickly opened widely, he saidContinue reading “Down into the Depths”

Surga

After a cloudy few months, we’re spending March Break at a place of happiness. We booked this family getaway last October, before I knew one of my closest friends would lose her brave battle with cancer in November. Never would I have guessed Ma would pass away a few weeks later. For better or worse,Continue reading “Surga”

Celebration of Life

On Saturday, surrounded by family and friends, near and far, we said goodbye to Ma. It was celebration and catharsis. I am thankful for the last few weeks to reflect and to remember what an inspiring life Ma lived, full of love and accomplishments. Loved ones from afar, including Philippines and Guam, joined the serviceContinue reading “Celebration of Life”

Angels in the Infield

During school lunch a few weeks ago, T proclaimed to his class he was refunding his parents. His CYW recounted to us with amusement, via text message, that T ranted out loud that he had told Daddy (the hubby) many times that he didn’t want meatballs for lunch and still got them. Due to thisContinue reading “Angels in the Infield”

Finding Connections

As social creatures, we yearn for connection and we thrive when we have psychological safety. This was the key takeaway from a virtual talk by FASD expert Nate Sheets I attended during a recent caregivers group get-together. I’ve followed Nate’s work for a while but it was my first time attending a live talk andContinue reading “Finding Connections”

The Darkest Dark

We remind our little guy that he is stronger and braver than the monsters in his head. During a recent Sunday morning, around 1:30, I was woken up by the hubby having a fit. T had turned on all the lights in the house, downstairs included, and was up playing with his toys – becauseContinue reading “The Darkest Dark”

Life is a Gift

Live and love as if it’s your first and last day on Earth. Our caring, curious, funny and not-so-little guy turned 9 this weekend. How is that possible?! The past year brought adventures and hard losses and through it all, he steps forward with his fun-seeking, resilient and endlessly energetic spirit. Our consecutive hard lossesContinue reading “Life is a Gift”

A Thousand Words

Sometimes, a picture sums up life’s depth of emotions better than words ever could. Yesterday, we had lunch with family to celebrate Ma and my aunt’s birthdays. Ma’s absence was noticeable. Afterwards, my uncle, recently returned from the Philippines, gave me Ma’s urn. It was a strange feeling holding it in my hands. The logicalContinue reading “A Thousand Words”

Ray of Light

We took T to his first concert, Madonna’s Celebration Tour, and it provided a needed holiday. Our family had a challenging start to 2024 and this show was a ray of light during gray days. We prepped T for his first concert by looking at photos of the venue and show and speaking about whatContinue reading “Ray of Light”

Far From Home

During the holidays, I unexpectedly flew to the other side of the world to visit my ailing Ma. Ma moved back to the Philippines in July. In early December, her myositis autoimmune disease, which attacks and weakens her leg muscles, resurfaced and a few days before Christmas, she had a fall at home. On ChristmasContinue reading “Far From Home”

The Gift of the Redo

Christmas is a time for forgiveness and it is the kindest gift one could give and receive. When we were having rough patches this fall with T – a part of the FASD parenting life – we met with our developmental pediatrician, who has been supporting T since he was 18 months. In addition toContinue reading “The Gift of the Redo”

“I Believe in the Power of You and I”

We attended T’s wonderful school holiday concert this week and it moved me to tears. The school concert was the first since the pandemic, and T and the kids did such a great job. It brought back wonderful memories of holiday and Spring concerts, pre pandemic, when T was in preschool and kindergarten. I rememberContinue reading ““I Believe in the Power of You and I””

In the Dog House

In my next life, I want to be a therapy dog. I took part of Friday off to take T to a PA Day paw therapy program hosted by the amazing Surrey Place team as part of their ongoing services for children with FASD and caregivers. T and I loved the horse therapy program theyContinue reading “In the Dog House”

The Writing Parlour

Helping my third grader build writing skills is like making pizza; layer one ingredient on at a time. The process sometimes feels like a struggle with a disability like FASD layered on top – but it nonetheless feels like I’m watching something special grow from infancy. It brings back fond memories of the early days,Continue reading “The Writing Parlour”

Why Stories Matter

Stories and personal testimony can inform, inspire and be a lifeline to someone. December 1 marks the fourth anniversary of this blog and my first post, introducing T’s prognosis and our family. I started my blog as a way to process my thoughts on the FASD parenting journey and to raise awareness and advocate forContinue reading “Why Stories Matter”