Running for Life: “I’m Not a Quitter”

Thanksgiving is quieter and simpler this year.

Two years ago, I hosted dinner for Ma and my sister; the latter had just moved in with us after receiving her terminal cancer diagnosis.

Last year, Ma was at the Philippines for an extended visit and I don’t remember if we even did anything for Thanksgiving.

So much has changed in just two years.

Life doesn’t stop and we keep moving, because we want to get as much from this journey before the finish line.

The start of a new school year means the start of cross country season.

For the third year, T signed up for the cross country team.

He enjoys running and the daily practice runs at school are good for him.

At the beginning of October, his school participated in the first cross country meetup of the year.

He did well in Grade 2 but not so well last year.

We reminded him to pace himself, to keep running and to make a hard sprint at the end.

The hubby took the day off and volunteered as a helper, so he got a front row view of the race.

T did great! 28th out of over 100 boys.

Even better, he qualified for the next meetup, the first time he’s advanced to the next round, mid October!

We are all so thrilled and proud of him!

Every morning, I play Wordle.

For the last two years, faith has been my opening word.

It’s something I reflected on through my family’s adversity. How do you keep going through challenges and have faith everything will be ok?

The lesson I’ve learned is things don’t always turn out ok. But despite things not turning out the way you hoped, you will get through it.

On September 27, 2024, after over two years, faith paid off.

This past Tuesday, T’s school hosted their annual curriculum night, where parents got to visit the classroom.

It was nice to tour T’s classroom and to see the strategies his CYW have put in place to help him be successful.

They are currently dealing with task completion and negative attention seeking behaviour – so we’re strategizing to find ways to help T.

Present day me is responding more calmly than me two years ago – so it’s nice to see my growth! 😆

T’s class were asked to write a letter to share with their parents that night and this was T’s lovely letter for us. 💕

Thanksgiving is quieter and simpler this year.

It’s just the three of us and the hubby is preparing a small cut of turkey breast and homemade stuffing; T is helping me cook Hong Kong Tomato Beef.

Later this week, the hubby and I will cheer T on at round two of the cross country meetup.

It’d be amazing if T made it in the Top 20 so he could advance to the final round: the city-wide championship.

Regardless of what happens, the experience in itself is the blessing.

It’s not always easy being T’s parent, but he’s the reason I run for life and don’t quit.

As we help him continue to process his FASD diagnosis, we remind him it’s not the finish line that matters – but the process and journey of practice, persevering and not giving up.

On this Thanksgiving Day, these are reminders that there is so much to be thankful for.

Sports as Social Medicine for Neurodiverse Kids

On the last Sunday morning of September, T woke up excited for his first soccer lesson.

T loves soccer and his CYW suggested enrolling him into lessons.

Sports is often therapeutic for neurodiverse kids, like T who has FASD and ADHD, to help burn off energy and to regulate their mood.

I also see social benefits in sports.

One of our hopes is that soccer lessons will also help T build teamwork skills and social connection, two areas of need.

T was so pumped for his lessons that he went to practice in the field behind our home before we headed off to class.

We ran into a neighbour whose son once kicked his ball into our backyard.

His son practiced kicks by the goal post on the other side of our fence for hours in warm weather.

The dad told T to keep practicing because his son is now in university in Portland on a soccer scholarship. 💕

A minute before T’s first lesson started, he blurted out that he forgot to put on underwear. 😂

But the class went well!

There were about 20 kids, mostly boys and 1 girl.

They started with warm up jogs then practice drills of soccer skills and then spent the last half of the class playing in randomly assigned teams.

Each team got to play twice.

Despite losing both his games, T had lots of fun and almost got a goal in.

He took the losses in stride, and I’m glad, because sportsmanship is a good skill to learn!

As we watched him play, the hubby dreamed out loud about T going to medical school on a soccer scholarship while working towards his first gold medal for diving in the Olympics.

I just wanted him to make it to the end of class without his shorts sliding off. 😆

After the game, we celebrated T’s first lesson with lunch at Dumpling King, where T finished a plate of his favourite pork dumplings.

The second class this recent Sunday also went well.

T’s team won the second of their two matches.

Even though T didn’t score the winning goal, we both cheered out loud when the ball went in. I may have screamed excessively loud. 🤣

I loved watching T’s eyes light up, hands thrown up in the air and big open smile and cheer.

I hope he learned that when he plays as a team, everyone wins together.

As we left the recreation centre, T asked to slow down so he could say bye to one of the kids.

As our car left the parking lot, he asked to roll down the window so he could say bye to the kids.

Cooking for the Soul: The F*ck Off Cholesterol Edition

When my family doctor asked to meet about my bloodwork, I knew I had to start taking cholesterol meds.

He let me know last summer that my cholesterol was high and we tried to lower it through changes to nutrition.

I’m a fairly healthy person – eat, sleep and exercise mostly well – so I’m blaming this on genes. My Ma and her siblings all had/have high cholesterol.

The call was scheduled during a recent work day. I brought in two big bags of chips for my colleagues and I to open after he delivered the news. 😂

If I have to start on pills – which he confirmed – I might as well put them to good use! 😆

Your Health Matters as a Special Needs Caregiver

Parenting is hard – even more so when supporting a child with a disability such as FASD.

The recent back-to-back deaths of my Ma, sister and dear friend made me confront my own mortality and the fragility of life.

In the rare moments I let my mind wander into darker thoughts, I think about the sad scenario of not living long enough to be there for T when he needs me most.

So I do take my family’s health very seriously.

But alas, this is a light-hearted post!

Cooking is one of my self care therapies and in light of my recent medical change, I’m making an even bigger effort to eat better.

I’m discovering just how refreshing and fun salads can be!

Who Knew Salads Would Be So Fun!

This mango caprese salad turned out well.

I chopped and tossed the ingredients instead of laying them flat on a plate as it’s usually done.

I blended Greek, Korean, Mexican and Indian flavours with this gochujang salmon topped on garlic naan with guacamole spread and served with cucumber dill feta salad.

This strawberry jalapeño salsa was inspired by an Instagram reel I randomly scrolled across.

It provided a sweet and spicy kick with the fried (with olive oil) tilapia.

As someone who grew up in the Philippines, mango is now a treat.

Served and tossed in this salsa with red pepper, red onion, cucumber and cilantro.

Guacamole was such a treat for me growing up and who knew it was so easy to make. So it’s like jam now. 😆

This time, accompanying an open face garlic naan sandwich topped with smoked salmon and egg.

Finding Healthier Versions of Comfort Foods

I made this healthier version of mapo tofu, substituting ground pork with chopped mushroom.

Yah, I’m going back to ground pork next time, cholesterol be damned. 😆

I made this Taiwanese fried chicken, garnished with fried basil, using an Air Fryer instead of frying it in oil.

It turned out great! So it’s a keeper.

I’m sneaking in this roasted butternut squash boat topped with chopped Italian sausage, onions and dried cranberries because it turned out well and my in laws enjoyed it when I made it for them.

Sausage is not the leanest meat but sometimes, you gotta enjoy life! No point living till 100 if all you’re eating is grass.

A Salad Surprise for T!

I’ve written numerous times about our selective eater T.

It is undoubtedly due to sensory issues – things smell and taste differently to neurodiverse people, especially kids still exploring their palette.

He eats a lot of carbs and fruit – and yes, junk – and gets protein through eggs, yogurt, milk, hotdogs, meatballs and McDonald’s burgers. 😝

One recent win was T trying and loving my homemade protein-rich Hong Kong Tomato Beef, which I now make every two weeks, and enough so he can pack leftovers for his school lunch with rice.

This week, we received a surprise.

His CYW texted us this photo and let us know T tried a plate of salad, provided to kids as part of the school’s morning nutrition program.

Well, what wonderful news! The salad consisted of peppers, cucumbers, romaine lettuce, grape tomatoes, celery, feta cheese and dressed with salt and olive oil.

We will take this win and add it to T’s slowly expanding repertoire of nutritious meal ideas.

Kindly ignore the fruit roll up in the photo. 😝

The Stories We Tell

Stories inform, inspire, and illuminate life’s complexities and contradictions.

Earlier this week, our team at work participated together in a learning and reflection activity to pay respect to National Truth and Reconciliation Day, which is observed on September 30.

We watched a short documentary that featured interviews with survivors of the residential school system.

My teammate who led the activity gave an important reminder: while residential schools are a dark part of Canadian history, there is more to Indigenous people – joy, light and a rich culture.

Stories matter. The stories we tell each other also matter.

I recently had the joyous opportunity to chat with authors Wynne Leon and Vicki Atkinson, the warm and good-hearted hosts of The Heart of the Matter podcast about writing as self care and advocacy.

Writing is something I’ve always enjoyed and found therapeutic.

While I studied journalism at Toronto Metropolitan University and freelanced for many years, life took me down a different path from writing, one I am blessed to be on.

Five years ago, I started this blog as a way to raise awareness about fetal alcohol spectrum disorder.

At the time, I was so pissed off about our school board’s shortsighted decision to cut T’s specialized kindergarten program.

This blog soon became a space to do my part to raise awareness, advocate and to candidly reflect about raising a child with great potential and a diagnosis of FASD.

One of the unexpected gifts was connecting with people around the world, including a food blogger who once worked as a case worker, an author raising a daughter with a rare chromosome depletion, a bereaved father in the UK of a wonderful autistic teenage boy, educators in Australia and Africa, and adults with lived experience shining their light to the world.

The rewarding moments are helping raise awareness, one person at a time, such as when a travel blogger from Indonesia let me know he shared with his mom about what FASD is and it made him think differently about unruly kids.

One of my earliest blogging friends was Wynne and it’s been fun to see our kids grow up in real time.

It was through Wynne I met the wonderful Heart of the Matter community, including Vicki, who writes compellingly, including about her sister Lisa.

It was a joy chatting with them both and we could’ve talked for hours.

It reminds me we’re all in this big, joyful and messy ball called life together.

It reminds me our stories are complex and that we are multi-dimensional.

T is not defined by a diagnosis nor do we live single-identity lives.

We have hard moments but we have many more moments of fun, joy, laughter and adventure.

As humans, it is convenient to put people into categories. I get it, we’re human and I am guilty of this too.

This is why the stigma of FASD can be so damaging.

On Friday night, after picking up T from daycare, I took him to Taco Bell to celebrate his perfect score on his spelling test.

I let him play on my phone while we waited for our order and he lost his cool when he lost his game. “Fuck you, bitch!” He screamed at the game loudly.

Yes, it was very inappropriate and I was quite embarrassed, but such is life with a kid who lacks impulse control and regulation, two symptoms of his disability.

As I continued to stand in line, an older woman came up to me and with a serious look, she asked, “Is he your son?”

Oh boy, here we go, I thought. “Yes, he is.”

“I want to talk to you about what happened.”

I had a long busy day at work and my mental and emotional reserves were spent, so my patience level was razor thin.

“I’m a social worker. Is your child autistic?”

“No, he has FASD.”

Her frown deepened.

“That was not ok what he did,” she said. “And if you don’t get a handle on it now, it’s going to get very hard for you one day.”

I cut her off, even thought she kept on going.

One of my triggers and pet peeves is unsolicited parenting advice. I have zero tolerance for it.

On the drive home, I was so upset and took it out on T by telling him about the encounter and reminded him this type of behaviour creates embarrassing situations for all of us.

T felt bad and burst into tears. He said he doesn’t know why he says those words out loud.

But we know why.

I felt really bad and burst into tears. I held his hand when the car stopped at a red light and I apologized for taking out my frustration on him.

I told him I wished it wasn’t so hard for him and that I know things can be hard for him.

It’s not his fault the world can be filled with judgment and misunderstanding.

This needs to change.

And we do it by sharing stories and changing minds and hearts, one person at a time.

Ain’t No Mountain High Enough: Riding Banff Gondola Up Sulphur Mountain

The big picture view always puts the small details into clear perspective.

On Day 3 of our family trip to Banff in early July, we took the Banff Gondola up Sulphur Mountain.

As it’s a popular spot, we reserved a timeslot ahead of time online to minimize the wait to board.

As someone who gets antsy of heights, I felt a tad nervous inside the gondola during the 8-minute, 700 metre ascent up the summit.

T took it like a champ. 😊😆

It was a rainy day so the visitor center at the top of summit, 2.3 km above sea level, was packed.

But the views were so worth it!

Even on a misty gray day, the scenic view of six mountain ranges and the town of Banff and the Bow Valley below were breathtaking.

Sulphur Mountain was Banff’s original weather station and visitors can take an easy 1.1 km boardwalk hike from the visitor center to Cosmic Ray Station, which provides additional panoramic views along the way.

Looking at these photos again make me long to visit again one day soon.

These mountains have seen so much over time.

Looking at them, in pure awe, reminded me of how small we are in both size and our time here.

It reminded me how simple life is for the wildlife that we spotted along the way.

Like this outgoing chipmunk – do you see it?

Or this family of mountain goats that passed by the visitor center.

Family, including found family, is true wealth.

We descended from Sulphur Mountain around lunch time and enjoyed lunch back in town.

We then took a short nap in our hotel before heading back out to enjoy the beauty of Banff.

There is no mountain high enough that the hubby and I wouldn’t climb for T.

We are thankful that on this parenting journey, we get to climb those mountains, figuratively and literally, together with T.

Soaking in the views at the top are so much more meaningful when we’re together.

Explore our Banff Trip

“Up My Butt!”

This is a wholesome and positive post, I promise.

Two weeks into the new school year 4, T and our family are settling into more structured days.

Some good news, T still has his Child and Youth Worker support for academic subjects.

It is very rare for a 4th grader to have this support and we are very thankful.

Evening homework is back and the expectations are higher. While there are tantrums, T is doing well so far at completing his work .

T is now starting to learn French. Good thing the hubby is fluent, so French homework is his baby as I have the joy of math homework.

The hubby and I are making a concerted effort this year to increase social connection for T.

In addition to swim lessons, the hubby registered T for soccer classes. It’s an opportunity to build on something he loves and to hopefully make friends.

I applied for the Big Brothers program. It’s a long waitlist but the goal is to match T with a 1-1 mentor, as this can help him transition and get through his coming teen years.

T’s love for dogs continues to grow and it is adorable seeing him approach strangers and politely ask to pet their dogs.

I reached out to a dog therapy program to arrange ongoing 1-1 visits with T. The waitlists for their volunteers are long, but it’s something we hope to add to T’s social connection toolkit.

I am using my limited free time to help advocate for FASD awareness, including participating on a recent virtual panel for caregivers.

I let T know I’m doing these activities as I want to feel part of the process. FASD is just one part of his life and I want to normalize it for him.

Halfway through the recent school week, his CYW let us know T sits with three kids in class.

Whenever a kid asks T where markers or rulers are, T would reply in his mischievous way, “Up my butt!”

His CYW reminded him to talk nicely if he wants to make friends.

Later that morning, she texted to let us know that the class is talking about SMART goal setting and T wrote down his goal all on his own:

“My goal is to make friends with my group. To use nice and kind words. Not to make fart noises. I will ask (my CYW) to remind me every morning before class starts so we can have a great day.”

😭😭😭

This kid makes me so proud at his purest moments.

On Friday, near the end of the school day, his CYW texted us the results of T’s first test of the year – 17/18 on his spelling test. And words are harder!

I have no doubt there will be ups and downs this school year, but it’s been a wonderful way to settle into cooler autumn days so far. 🙏💕

Drumming Heartbeats for FASD Awareness Day

September 9 is International FASD Awareness Day.

Fetal alcohol spectrum disorder describes the impacts on the brain and body of someone exposed to alcohol in the womb.

On Sunday, we participated in a community event at St James Park in downtown Toronto organized by Surrey Place, the wonderful organization that has supported T since he was 1, including completing his FASD diagnosis in 2022.

Lovely tshirts designed by high school students with lived experience. We got shirts for T and us.

It was great to meet self advocates Myles Himmelrich, RJ Formanek and Maggie May, the latter of whom is from Ireland, whose work I’ve followed and admired.

I joined Surrey Place’s Family Advisory Council last summer. I don’t have much free time but it was important for me to do my part to advocate.

It was nice to meet members and staff in person. I also reunited with T’s developmental coordinator. It was cool to see her 8 years later!

Left to right: The amazing Myles Himmelrich (left), Maggie May and RJ Formanek.

The outdoor event, blessed with great weather, included inspiring talks by the advocate guests and an Indigenous drum performance.

T spent the event going from one dog and owner to another and kept himself nicely occupied.

We then joined 50+ people, with an Indigenous drummer leading our group, to march 2 km to the Ontario Court of Justice.

T did a wonderful job keeping up. I spent most of the walk talking with one of the staff psychologists who supported T’s diagnosis. It was our first time meeting in person.

While T was marching and not paying attention, he walked face first into a standing sandwich board advertising happy hour at a pub.

I laughed at the irony of the situation, although the hubby had to pick up and carry our crying child.

Upon arriving, several people fastened a sign by the entrance to advocate for awareness and justice.

An important lesson I’ve learned in this caregiving journey is T and individuals with FASD are not broken nor do they need fixing.

With the right supports, they can thrive and we can increase understanding and reduce stigma. 

Community is important for children and caregivers. We are thankful to be part of a growing community.

With each connection we make, we help T understand he is not alone. FASD is just one part of him; it does not define him.

There’s a lot of work to be done with the school board, government and at the societal level.

Tomorrow night, CN Tower will be lit red to recognize FASD Day along with monuments around the world, as far as Australia (hello Australia! 🥰).

It is heartening to see awareness increasing globally. One step, one heart at a time.

T changed our world and we’re gonna work with him and others to help change the world.

After the event, we walked to City Hall and enjoyed hot dogs and ice cream at Nathan Phillips Square.

As we were putting T to bed at night, we told him how proud we are of him.

Then he declared he was not going to school today. “It’s FASD Day and I have FASD, so I’m staying home!”

“Nice try,” I said. “You’re still going to school.” 😆

The Boy with the Big Outdoor Voice

“Oh my God, when is that baby going to stop crying,” our 9-year-old said loudly during our recent flight home from Banff.

I was horrified and amused. The woman behind us burst out laughing.

Such is the life with T, who is never shy to speak his mind, even and especially when things are best said with an inside voice.

Like when we walked passed a man, and within hearing distance, he said matter of factly, “That man is fatter than Daddy!”

Or when we were at a McDonald’s in Banff and he stared at a woman sitting at a table with her kids then said to us, “Why does that woman have so many kids?” 😆

Yes, it’s part of being a kid.

Yes, it’s part of his exuberant personality.

I know it’s partially due to it being a symptom of FASD, which makes him quick to speak and act before thinking through cause and effect.

Impulsivity and disregulation can make a challenging combination for those caring for individuals with FASD.

It makes life unpredictable, in both hard and amusing ways.

Like during a dinner outing with family at a crowded restaurant and we asked T to try something and he said, “This smells like shit!”

Thankfully, Chinese restaurants are very loud.

As amusing as these moments are in hindsight, the hubby and I are also struggling with T’s language the past year.

Regular swearing – often times, a tic – rude language and talking back.

We try to work with him to address this, because we know if it continues, it will make it hard for him in the larger world, be it school, friendships, relationships and one day, work.

I can already see how off putting it is for others and it hurts my heart to see that.

But I do also see his big outdoor voice as something that can be channeled into something positive.

T is assertive and can argue with persistence for his point – and boy, is he good at bringing up things you’ve said in the past to his advantage.

These can be honed into strengths and personality assets for him one day.

As with anything in life with T, it’s a work in progress and we try to focus on the big picture.

We remember who T is at his core and at his purest moments – a kind, caring, funny as hell kid.

The “I love you!” that he screams out loud at night from his room to us after we’ve put him to bed is the best medicine for the soul.

As we start this new school year – how do I have a 4th grader already?! – I hope we can all work together to support his growth and to develop his big outdoor voice in a positive direction, while helping him develop a positive inside voice too.

Riding the Rollercoaster of Life

The build up often outlasts the thrill themselves, but boy, are they worth it sometimes.

Our annual Labour Day weekend camping plans were thwarted by bad weather and we kept it local and chill instead.

We took T to Canada’s Wonderland on Saturday, a beautiful day, our first visit in two years.

Going in, we told T that he wasn’t tall enough to go on the big rides – two inches short! – but we were thrilled to learn that now at 52 inches, T could go on all but two of the rides.

This included Yukon Striker, the newest roller coaster and T’s first big intense coaster.

Whoa! Adrenaline rush and excitement for all of us, probably me the most! 🤣

Check out this beauty: 1,103 meters long, a three second hold at the top as you stare down the 75 meter drop and a top speed of 130 km/h.

As we approached the lineup, my excitement turned into nervousness.

It’s been years since I’ve been on a big coaster, and my first time on this ride.

Seeing riders dangle at the precipice didn’t help. 🤣

The three of us sat at the third and most rear row. There was no way I was sitting at the front.

As we ascended up the long tall ramp, I gripped super tightly onto the bars.

I usually turn to see T’s face, because I love seeing the world through his eyes. Nope, the back of my head was planted firmly to the seat cushion.

When we reached the top, the coaster inched over the cliff and dangled us for what felt like an eternity.

Then it released us.

I had to close my eyes.

I heard T screaming, “What the fuck!!!”

Our bodies were thrown to the left, to the right, upside down then 3 minutes and 25 seconds after we started, it was over.

As we waited to disembark, I turned to T. His eyes were closed. He claimed to have passed out but he was being funny and dramatic.

But the ride did leave him speechless.

He spent the next few minutes outside the ride watching others experience the thrill.

The rest of the day was very relaxing.

T found comfort in going on the rides for smaller kids too. As I watched him spin around the baskets, I thought about how finite these summer moments are with this little kid.

This was also the first visit to Wonderland when he chose to go on the rides with me, as he usually liked to sit with his daddy instead.

I’d be lying if I said that it didn’t make me feel especially loved.

Wonderland would not be complete without funnel cake topped with strawberry syrup and ice cream at the end of the day.

T spent the following day watching POV (point of view) videos on YouTube of Yukon Striker.

As I watched him through my sleepy eyes, I thought about the roller coaster of our lives.

We spend so much time building up for shorter moments of thrills – be it work and the weekend, school and summer break, or planning and anticipating a vacation.

It reminded me as I get older, I am prioritizing life itself.

Because as quickly as this ride begins, and as suddenly as the thrills are upon us, it is over in a flash.

Visits to the Hospital

Parents want to protect children from hard realities of life but these moments can provide valuable lessons.

T has faced a lot of heartbreak for a 9 year old, including Ma’s death this year and my sister’s death the prior year; the latter lived with us in the last few months of her battle with cancer.

He’s also learning to process his diagnosis of FASD, something we shared in late 2022.

Most recently, my Aunt – my late Ma’s sister – had a fall and had to be hospitalized as it resulted in a small fracture in her spine and she needed emergency surgery or risk paralysis.

We delayed our recent visit to T’s grandparents in the East Coast by a day, so we could visit her and be in town for the surgery.

When we told T, he cried for quite a bit as he thought that she would be the next to die.

We reassured T it was a straightforward procedure with high success rate and that he could see for himself that she is ok.

She was admitted to a hospital in downtown Toronto.

We parked a few blocks away from the hospital and when we got out of the car, T noticed a store sign and shouted, “Vape shop!”

To think there was a time when I worried this child would never learn how to read. 😆

The hospital was located in a grittier part of the city, where there was a homeless shelter and many precariously-housed people in a park along the walk to the hospital.

While I kept a close eye on T, I didn’t feel unsafe. I feel it’s important for T to be aware of all walks of life, especially when he is aware of his birth mother’s life circumstances; and to be respectful and empathetic to all.

T gave my aunt a handmade card he drew.

He’s obsessed with the Titanic and has drawn countless images of the same pivotal moment when the ship splits in two.

A part of me chuckled that this was not the most appropriate image to give to a person who needs surgery for a fracture on her spine.

But as with everything with T, context matters.

The card and the message inside came from his pure and beautiful heart.

He held her hands several times and I know it provided her with comfort as much as it provided him with reassurance she’ll be ok.

We visited my Aunt twice when we got back, most recently on Friday night after work.

She was moved to a rehab centre closer to our home and looked so much better!

She is continuing to wear a neck brace for the next month as she undergoes physiotherapy.

This picture of our cat Kyrie with a cone gives you an idea of my aunt’s current condition!

I’m thankful things are on the mend and this experience was an important lesson for T about resilience and keeping the faith.

The Tumbles and Polish of Sea Glass

Picking up treasures on pebbled shores reflected the journey through life’s imperfections.

One highlight from our visit to T’s grandparents in New Brunswick was picking sea glass.

Wonderopolis describes sea glass as pieces of glass smoothed over time by the tumbling of water, waves, and sand.

As glass soak in salt water and get tossed against sand, sometimes over 50-100 years, sharp edges become smooth and glass take on a frosted look.

The glass originates from broken bottles, jars, dishes.

The photo below shows the contrast between sea glass and regular glass.

T spent time every day searching the beach by his grandparents’ cottage for sea glass.

I joined him for some of these walks as I enjoyed the soothing salt water air.

There were sporadic sea glass to be found.

One morning, we drove an hour away to Grande-Anse, a scenic town we visit every summer.

Some homes are right by the edge of the cliff overlooking the bay and look so tranquil!

There is a small pebbled beach next to a wharf where sea glass are always plentiful!

Each armed with an empty margarine container, we spent nearly two hours quietly searching.

It was good exercise for our knees and lower back!

Three generations of guys picking sea glass!

T really got into sea glass this year and did great!

Green, white and brown are the most common.

Blue is rare and red, orange, yellow and purple even more rare.

I found a beautiful lavender glass, which T took credit for when he showed his grandparents! 😆💕

We then enjoyed lunch at a side-of-the-road canteen, while T patiently sorted glass by colours.

For a kid with ADHD, he was super focused!

I focused on my cheeseburger and poutine. 😆

T noticed some blueish-white glass, which he put in the blue bucket. Just beautiful.

T’s Grammy bought a glass jar from the dollar store to display our collective treasure and gifted it to T.

The parallel between sea glass and FASD is not lost on me: shattered bottles, perhaps beer and wine, refined into sea gems as they’re also called.

A part of T’s life will be forever impacted because of prenatal alcohol exposure.

But his sharp edges can be smoothed with support, awareness and understanding.

Challenges that seem rough at the moment look and feel different in hindsight.

Just like sea glass can’t be rushed, life itself can’t be rushed.

Life is experienced.

This treasured jar will sit on the bookshelf in our family room. We hope to add to it over the years and for T to pass this tradition onto his children.

Swimming at Nigadoo Falls: An Off the Beaten Path Oasis in New Brunswick

Often times, the best activities are those known to the locals.

At the top of T’s list to do during our annual summer visit to his grandparents in Beresford was to swim at Nigadoo Falls.

It’s a beautiful, rocky and fresh water spot tucked in the woods, off the unassuming Rue du Moulin in Nigadoo, the town next to Beresford.

We parked our car at the side of the road and hiked a short 1 km trail.

There was a very steep and narrow downhill hike as we neared the falls.

Then the beautiful oasis revealed itself.

We first visited in 2021 and the view still takes my breath away.

The water was so refreshing and clean.

T, his cousin A, the hubby and I and had a blast swimming, while T’s grandad watched us from the rocks.

There are very deep parts within water where locals jumped off the rocks into the water – such as the brave individual pictured below from 2021.

I can verify the water gets very deep, because my ears popped when I swam to the bottom to fish out goggles that T had dropped. 😆

T has come a long way with his swimming skills.

This was the first summer we let him swim without a lifejacket, so he could explore the deep water.

I thought back with amusement to our first visit in 2021 when mischievous youth emptied a bottle of detergent at the top of the falls and created an impromptu foam party.

After our swim, we hung out by the rocks and enjoyed snacks, including Pringles for T.

A beautiful monarch butterfly hung out with us.

When we got home, we enjoyed a delicious pasta salad T’s Grammy prepared and I made air fried chicken thighs to go with them.

Wild Blueberries

We’re letting T run wild this summer, taking a more relaxed approach than previous years.

Usually by the end of June, I would’ve lined up worksheets and books from his teacher, to work on with T over the summer.

I did this to avoid summer learning slide, as I’m mindful of T’s FASD and ADHD.

Maybe I want to minimize our stress or I recognize that childhood summers are short, but we threw caution to the wind this summer.

And it’s been one of our best summers with T.

Every summer, we spend the first two weeks of August visiting T’s grandparents at their cottage in Beresford, an Acadian town in New Brunswick.

This year has been a mostly relaxing visit – although T’s increased swearing is not impressing anybody.

We were joined by the hubby’s sister and A, T’s cousin whom he adores.

One late afternoon, T’s grandad took the hubby, two kids and I to pick wild blueberries in the woods; not a farm, but a wooded area off a dirt road.

At a first glance, it looked unassuming but as we walked into the trail – past moose tracks! – the treasure appeared, free for the taking.

Bushes upon bushes of blueberries in the wild.

Now I understood why our niece told us to keep this place top secret.

We spent 90 minutes quietly picking berries.

T worked with his cousin to fill their margarine container.

He was so focused. I bet he enjoyed the sensation of plucking berries off the stems.

It was hot and humid but we all wore long sleeves and pants to avoid being bit by insects.

I was doing well until I accidentally dropped my container! 😔

I salvaged as much as I could and managed to get half a container at the end.

Check out the group’s total haul below.

Imagine what stores would charge for this. We were blessed to have picked these in the wild.

The next day, my mother in law and the hubby spent hours cleaning the blueberries.

It was quite the effort!

That evening, my mother in law made a delicious no-bake blueberry cream cheese pie. 😋

According to farmers, wild blueberries have twice the antioxidants of cultivated blueberries, because they adapted to harsher climate.

When I think about this summer, I see the benefits of letting go of the need to cultivate control and to let T be wilder.

To be clear, I’m not saying throw rules and structure out the window.

It’s about recognizing childhood is short.

Something valuable is gained when we let kids have fun freely – be it a deeper bond with grandparents, warm memories that’ll carry them through hard times, or feeling rested so they’re ready to tackle a new school year.

This is harder to do as a special needs parent, when you are always on guard and feel like you’re always playing catchup or needing to be a step ahead of the next challenge.

By letting go of the need to control everything, we’re letting our kids grow in the wild and soak in all that life has to offer.

In the end, they become stronger and hardier for all that lies ahead of them.

Playing at the bay by his grandparents’ cottage with one of the neighbour’s dogs.

Hiking Takakkaw Falls and Canoeing Emerald Lake at Yoho National Park

We saved some of the best experiences for last during our family summer trip to Banff, Alberta.

I intentionally kept our last day as a blank slate when planning the itinerary.

At the advice of a local, we spent the day exploring Yoho National Park, located an hour drive from the town of Banff.

Our first stop was Takkakaw Falls. At 373 m, it is the second tallest waterfall in Canada.

The uphill drive through the woods was calming and we were blessed with beautiful weather.

From the parking lot, it was a 30-minute and 1.5 km hike to the falls on a flat well-maintained trail.

We stopped at scenic lookouts and I still laugh at our fearless pest, photobombing his Daddy by not-so-safely crawling across the front of this bridge above the rushing river.

It was cooler as we neared the Falls and its refreshing mist.

What a beauty.

Our next stop was the stunning blue-green Emerald Lake, a 30-minute drive from the falls.

The bonus was that we got to canoe, an activity we lamented not doing at Moraine Lake.

The canoe rental shop was also cheaper compared to the more well-known Moraine Lake.

As we were lining up at the canoe rental place, I struck up a conversation with a couple from Florida, pictured above.

The wife had asked if we had adopted T as one of her sons was gay and looking to start a family.

She shared that two of her sons were adopted and from what she shared, I wouldn’t be surprised if they also had FASD or a similar diagnosis.

The conversation reminded me my family is part of a larger community. We’re not alone in this.

We had the canoe for an hour and it was enough time to circle the breathtaking lake.

It felt so amazing being surrounded by blue-green water and dwarfed by snow-capped mountains.

But wait, there’s more!

On our way out of Emerald Lake, we stopped by the Natural Bridge, a natural rock formation that spans the Kicking Horse River.

We let T explore as we enjoyed the calming sound of the water and the refreshing breeze.

I love this photo below of T standing on the solid bridge looking out to the rushing river as it’s a symbol of grit against life’s turbulence.

T spotted many dogs during our trip. Most owners let T play with their dogs.

This photo below with this beautiful husky was my favourite from our trip.

After a busy day, we relaxed at our hotel and took a short late afternoon nap.

For our final night, the hubby and I treated ourselves to a steak dinner, as Alberta is reputed for its superb beef.

The steak dinner and the sides of grilled mushrooms and truffle Mac and Cheese were yum.

We enjoyed one final sunset walk along Banff Avenue, feeling grateful for our time here.

When we got back to the hotel, I noticed this lovely note below that T had written, unprompted, for the staff while the hubby and I were napping.

Yes, we had annoying and disregulated moments during our trip with T, but as this note reminded me, he is a pure and kind child at his core.

A positive way to end our final evening in Banff.

Explore our Banff Trip

The Quiet Beauty of Banff’s Lake Louise and Moraine Lake

Turquoise and emerald water, majestic snow-capped mountains and carpet of evergreens. A trip to Banff’s must-see lakes did not disappoint and there was an unexpected bear sighting too!

Our visit to both lakes on the fifth day of our week-long trip worked to our advantage, as the weather was great.

As we learned through our preparation, it’s best to take public transit to Lake Louise – an hour-drive from the town of Banff – as it saves on cost and avoids the stress of finding parking, as the lot fills up as early as 5 am during peak season.

The views and the experience did not disappoint.

We spent an hour exploring the lake at ground level.

We could have easily spent a day there, as there are numerous hiking trails, canoe rentals and also the Fairmont Hotel to explore, but we felt more than satisfied with our visit.

The breathtaking views will be tattooed in my memory for a long while.

Just to keep it real, the crowds were packed, see below, so don’t let my serene photos make you think otherwise. 😆

We then headed to Moraine Lake, a 30 minute drive from Lake Louise.

It is only accessible by transit or private shuttle during summer months due to how busy it is.

Gazing at the other-worldly emerald lake, it’s easy to see why thousands of people visit each day.

There were people canoeing in the glacial lake and we wished we had time to do so during our hour-long stay.

Our budding parkour artist enjoyed climbing and exploring the rocky terrain, with that thick carpet of trees in the background.

The views were spectacular and the fresh air was refreshing. I miss it already.

On our way back to town, we spotted a bear!

It was on the other side of a highway fence, so we were able to safely watch it from afar on the side of the road, along with other awe-struck tourists.

It was a beary lovely way to end the afternoon!

Explore our Banff Trip

Cycling the Legacy Trail and to Johnston Canyon in Banff

A 25 km bike ride in Western Canada provided an unforgettable scenic experience for my family.

On the fourth day of our week-long visit to Banff in Alberta, I planned a full-day outing around T’s love for biking; it was just last summer that our 9-year-old took off his training wheels.

There are numerous bike rental shops in town and we rented ours from Banff Cycle and Sports.

There are more than 190 km of biking trails in Banff – some trails are within town, some take you out far out, and all are scenic and lovely.

Based on recommendations, we decided to cycle the 25 km to Johnston Falls, which includes part of the Legacy Trail, along the way.

Boy, it did not disappoint with the breathtaking views all along the way!

The trail was well paved and maintained and most of the trail was exclusive to cyclists.

In addition to the scenery, we also spotted wildlife, including moose and deer!

The hubby catching up after pausing to look at a moose spotted along our ride!

We took short breaks to hydrate and take in the gorgeous lookouts.

Funnily, of all the photo breaks, this under bridge below was the one T got most excited about!

The hubby and I are not avid cyclists – nor do we have T’s energy – so we underestimated how hard 25 km would be, especially when you factored in the heat, sun and the many hills!

By the time we got to this Welcome point below, we still had 17 km to go! Our legs were starting to feel sore – and we still had to bike back after! – but T kept wanting to go and explore.

We are thankful we went against our better judgment, because the journey did not disappoint.

Look at these magnificent views.

Look at our T go – responsibly and safely sharing the road with cars and motorcyclists.

The last 5 km were trying. Our legs were jello and we walked the bikes up the hills.

When we arrived at Johnston Canyon, we were ecstatic to learn the local bus had a stop there that took people back to town and also had a bike rack. Crisis averted! 😂

So we rewarded ourselves with lunch at the local cafe then explored the beautiful canyon.

When I look back at this trip one day, this bike excursion will be one of the highlights.

I will remember how T kept us going through the ups and downs and exhaustion, much like how he is the reason I plow through life’s ups and downs.

I will treasure the sweaty contentment on his face throughout the bike ride and his enthusiasm as he cycled through this heavenly trail.

I will remember how he curled up on his seat on the bus ride home, passed out from exhaustion, then adjusted himself so his head rested on my lap.

When we got home to our hotel, I noticed T was clingy to me and being extra helpful.

When I said I was taking a shower, he turned on the water for me. Then he brought the toiletries. Then he said he tidied up my bed.

This was his way of saying thanks.

A week later, when we were a few days home from the trip, I asked T what his favourite moment at Banff was.

I expected him to say it was the bike trip.

He said, “Spending time with you.”

Explore our Banff trip

Family Summer Visit to Beautiful Banff in Alberta

We kicked off T’s summer with a week-long visit to Banff, a town within Banff National Park in Alberta.

Our Canada Day departure got off to a slow start with a 2-hour mechanical delay, while we were already seated on the plane.

“Is the plane going to crash?” T asked loudly and I reminded him to use his inside voice.

The 4-hour flight was uneventful and T was mostly regulated with a few restless moments.

The 1-hour drive from the Calgary airport to Banff was incredible once the tall snow-capped Rocky Mountains appeared.

We took it easy on our first afternoon and explored downtown Banff and watched their Canada Day parade.

As we had been up since 3:30 am our time – Banff was 2-hours behind Toronto – we went to bed early after letting T swim at the hotel pool.

Waking up refreshed on our first full day, we set off on our first hike, after breakfast, up nearby Tunnel Mountain.

It was non-stop zig-zagging incline trails – and the hubby and I were cursing ourselves – but T was ever the trooper, often leading the way.

The scenic views of pointed snow-capped mountains and clear turquoise waters below revealed themselves, layer by layer, as we made our way up Tunnel Mountain.

We eventually made our way to the top, an elevation of 1,690 m and at a summit once made by King George VI and Queen Elizabeth in 1939.

The burning thighs were worth it for the panoramic views.

T enjoyed the views too, wanting to document it amongst his photo memories.

T is at an age now, 9, where we can be less on top of him during hikes at more precarious places.

But he sometimes reminds us to keep a watchful eye on him.

An amused visitor from England said to us at the summit, “Looks like you have a monkey.”

Can you spot T on the tree below? Bet the view below was even more awesome from the treetop!

This kid has no fear!

We retraced our steps back down Tunnel Mountain and enjoyed the scenic lookouts once again.

We then headed off for afternoon tea at the Banff Springs Fairmont Hotel, something I planned for the hubby’s enjoyment as he loves this stuff.

The view was not too shabby!

I’m not normally into tea parties but these scones with cream and jam were delicious!

Afterwards, we explored the scenic grounds of this beautiful hotel, which opened in 1888 and hosted famous guests such as Marilyn Monroe.

The hotel connected to Bow River and we hiked along the trail, which lead to scenic Bow Falls.

If there’s a pebble or stone to be thrown, T will find it and throw it.

We headed back to our hotel in the late afternoon to relax then headed back out for dinner along Banff Avenue and enjoyed its scenic backdrop.

Banff is a place I’ve wanted to visit for a long time, pre-dating parenthood, and I am thankful we had this opportunity and to experience it with T and through his wonder-filled eyes.

It has been a challenging last few years for our family, filled with successive hard losses.

Taking the plunge with this family trip was a reminder to embrace the urgency of the now.

Explore our Banff Trip

Born This Way

We kicked off T’s summer by marching in Canada’s largest Pride parade and championed freedom to information.

I have a leadership role on my work’s Pride employee group and was part of the team that organized our march.

For the second year, we chose the theme of intellectual freedom and reused signs from last year, a mix of slogans such as “Freedom to Read ‘Em” and of book titles frequently challenged for featuring 2SLGBTQ+ content.

I carried the sign featuring “And Tango Makes Three” (below), one of my favourite picture books I read to T at bedtime, which tells the true story of two male penguins that raised a baby penguin.

With anti-2SLGBTQ+ sentiment rising around the world, and libraries facing increased intellectual freedom challenges, it is more important than ever to speak up against hate and intolerance.

If you don’t want to read books featuring gay people, don’t read them. If you don’t want to watch a drag queen lead a storytime, don’t join in. But don’t tell others what they can read and enjoy.

As our group neared the entry point of the parade, a woman stood in the middle of the street and started screaming semi-incoherently for us to repent or we would go to hell.

We ignored her and carried on with our message of love, respect and tolerance.

That really is the best way to respond.

The hubby is draped in the rainbow flag and T is wearing his cute new tilly hat.

T marched with us last Pride and he asked to march with us again.

I told the hubby to meet my colleagues and I close to the start of our entry into the parade, to lessen T’s wait in the loud crowded muster area and minimize chances for disregulation.

Aside from a few cranky impatient moments, T did great – and my heart is full.

One of my colleagues noted he was more outgoing this year.

My heart swelled watching him hand beads and our stickers – with messaging such as “Be Open,” “Be Curious,” “Be Brave,” – to kids and older adults sitting on camping chairs.

Our dog lover zeroed in on a few adorable pups along the way.

He shoved his way through a crowd to grab a photo with our mayor, Olivia Chow; also the wife of the late great Canadian NDP leader Jack Layton.

I am so proud of this kid.

He drives me crazy on a daily basis and his FASD makes some days hard. But on days like the Pride parade, his true self shines brightly.

As I was waiting in the chaotic crowded muster area with a few colleagues before we entered the parade, T came to hug me. It was his way of regulating himself.

Lady Gaga’s iconic “Born This Way” came on a nearby marcher’s portable speakers and the words resonated deeply at that moment.

“I’m beautiful in my own way

‘Cause God makes no mistakes

I’m on the right track baby

I was born this way.

Don’t hide yourself in regret

Just love yourself and you’re set

I’m on the right track baby

I was born this way.”

I always felt that a higher force brought T into the hubby and my lives and it likely would not have happened without T being born with FASD.

Life worked out in this way – and we’re on the right track baby, he was born this way.

The Glee cover of “Born This Way” is exceptional.

Goal Posts

Grade 3 is in the history books and we’re kicking summer off with soccer.

T has recently developed a love for soccer.

Thanks to his CYW, he had his own soccer ball and played soccer at recess with a group of boys.

There were bumps along the way, as T gets upset when he doesn’t get his way, but it was a good opportunity to learn about teamwork.

As a year-end gift, his CYW gave him his own jersey and shorts, inspired by popular Argentinian soccer player, Lionel Messi.

I may be biased, but T looks like a star in it.

He walks with extra swagger in it. 🥰

Like a World Cup finals match, the past school year has been filled with nail-biting moments.

But T finished strong like a champ!

We received his report card on Thursday and T got 3 As – one of which was for math! 🥰

It made all those meltdowns prepping for math tests worth it – and the hubby and I told him how damn proud we are of him. 💕

His teacher wrote thoughtful detailed feedback, which included:

“T has had a great ending to his Grade Three year. T is a caring, bright and helpful member of our classroom community. T has had some success in maintaining the self-control necessary to actively attend class, participate in activities and complete his work this term.”

We appreciated her feedback about where he needs work, but we’re putting all that aside for now.

Because we’ve reached this latest goal post: summer. For now, we rest, recharge, build fun memories outside the school grind.

The past work week felt long, because I had early and late days. I logged off early on Friday to pick T up from school on his last day.

Instead of going on the bus to daycare, I gave T an early start to summer.

It was heartfilling watching the teachers escort the kids out of the school to their waiting parents and the kids hugging their teachers.

As T walked out, he didn’t look happy nor excited.

“I want to go find Jimmy,” he said. He went right back inside the school and one of his teachers kindly allowed me to follow him.

We made our way to the front, where T found Jimmy, who he played soccer with during recess.

T gave him a hug and the two played for 30 minutes while Jimmy waited for his bus and I caught up with T’s junior kindergarten teacher who was supervising the group.

I loved watching T play with his friend, because it’s something I never see, only hear about at home.

When the bus came, I could see the anxiety in T’s eyes. He gave his friend a hug and watched him go on the bus.

As he waved to the departing bus, the tears streamed down his eyes and when he got into our car, he cried and said he’s going to miss Jimmy.

It was a bittersweet moment as a parent, because on one hand, I don’t like to see my child sad but on the other, it was sweet to see T experience the spectrum of emotions that come with friendship.

I took T to McDonald’s for ice cream, because if anything can help soothe the blues, it’s ice cream.

This morning, we got up and T asked me to kick his soccer ball around the living room with him.

This kid is pretty darn good, I have to say.

He got testy when I gave him a hard time with scoring a goal.

“I’m not just going to let you win,” I told him.

“Why not?”

“You want to play with people that are better than you, because that’s how you’re going to learn and that’s how you’re going to get better.”

My words flew over his head. But I like to think it’ll sink in one day for him.

It reinforced to me one of the things I’m grateful for in this FASD parenting journey. It kicks my ass most days, but it teaches and helps me to be better.

Going Off the Deep End

T loses control of his emotions on a regular basis, but today, it was for the best and proudest reasons.

The outdoor city pool opened this weekend and it’s a summer tradition for us to spend time there.

It’s a small plain pool but it is special place for us, because it saved our pandemic summer in 2020, when there was not much to do. We were there 4-5 days a week.

Four summers later, while we don’t go as often, we check it out every weekend.

T started swim lessons two years ago and it is an activity that he enjoys and that he can focus on.

Last September, T attempted the deep end test for the first time and he failed. It wasn’t even close.

I told him to not be discouraged. It means he needs to practice more, keep at it and try again.

T at the pool in the pandemic summer of 2020.

Nine months later, it was his shot at redemption.

T said he wanted to practice first and he swam two laps effortlessly.

I told him he did great. But he wanted to practice one more time – and did it again.

“Ok, I’m ready,” he said. “Can you tell the lifeguard?”

I told him that it was his test, so he had to call for the lifeguard. And so he did.

A group of older kids gathered in the middle of the pool and I was worried T would get intimidated.

But he began his test.

Lap 1 done without a sweat.

As he swam back, an older kid moved, unintentionally, in his way and T bumped into him.

I worried it would throw him off. But he kept on swimming and made it to back to the lifeguard.

“Did I pass?” He asked.

“You sure did,” the lifeguard replied.

T and I both screamed so loudly and jumped up and down then gave each other a big hug.

As the lifeguard put a sticker on T’s wristband, to indicate he passed, I apologized, “Sorry, I’m just an over proud parent.” 😂

“It’s all good,” the lifeguard said with a smirk.

How quickly these summers and time fly by.

“Are you ready?” I asked T.

I could see the excitement in his eyes as we swam towards the blue rope.

After all these years, he could finally venture to the other side.

As we entered the deep end, Bee Gees’ “Staying Alive” came on the stereo. How appropriate. 😂

There were less people in the deep end and I watched with absolute glee in my heart as T had such a blast exploring this new part of the pool and swam to the deepest part, which must’ve seemed massive to a small kid.

It’s tradition to take T to McDonald’s after our swim and to celebrate his accomplishment, I also picked up dinner there for the hubby and I.

As we drove home, T asked, “Are you proud of me?”

I smiled at him from the rear view mirror and said, “I am so so proud.”