Ignite the Night and Let It Shine

We started T’s summer with fireworks. On Canada Day last Friday – T’s first day of summer break – we headed off early morning to Tobermory for our first camping trip since 2018. Once we got past city traffic and into the country, the scenery was beautiful, including plentiful fields of golden yellow canola. IContinue reading “Ignite the Night and Let It Shine”

His First A!

As flowers bloom in our garden, T reaped a sweet harvest this week. Report cards were sent home during this last week of school. The hubby and I spotted T’s very first A right away – given for reading! We were so thrilled, because of how hard T – and all of us at schoolContinue reading “His First A!”

The Power of Anticipation

After starting his countdown right after Christmas, the big day is finally near. T had a blast spending Christmas in New Brunswick with his cousin. When we got home, he asked how many more days till her visit this July. During a recent bedtime, I told him that it was 45 days until she visitedContinue reading “The Power of Anticipation”

The Giving Tree

A scary thunderstorm downed a tree and created unexpected treehouse fun for neighbourhood kids. Saturday started off like any other Saturday – with T getting up earlier than my brain and body was ready for; playing dead no longer works. After lunch, as I was about to head out for groceries, Environment Canada issued aContinue reading “The Giving Tree”

Sharing A Child’s FASD Diagnosis with Them

How do you share difficult life changing news with a young child? That’s a question I’ve been thinking a lot about since we received T’s FASD diagnosis in January. The hubby and I shared the info with the school right away as it would better inform the way they supported T. We’ve held off onContinue reading “Sharing A Child’s FASD Diagnosis with Them”

Mother

A few weeks ago, T randomly asked about his birth mother. We don’t know what prompted the question but we took out his adoption book and showed him the one photo we have of his mother. We asked him what he was thinking and feeling but he was quiet. Then he moved on to hisContinue reading “Mother”

Advocating For Your Child

I took a nervous breath as the hubby hit ‘Enter’ on the Zoom call for the School Services Team meeting. This meeting held this past week was when we learned the school’s plans for supports for T when he enters Grade 2 this September. Advocating for your child is a necessary part of being aContinue reading “Advocating For Your Child”

Playing Sidekick to My Incredible Hulk

Our T has found a kindred spirit in a superhero with anger issues and the irony is not lost on me. Last week’s loan from the school library was a non-fiction book featuring the green Marvel superhero and we enjoyed reading it over several nights. I love that reading comics or books inspired by comicsContinue reading “Playing Sidekick to My Incredible Hulk”

Hitting the Reset Button

During a work call, I got a call from T’s daycare teacher. She was not her usual calm self. She said an older student had ran off the bus during drop off and pushed T against a wall. She had to shield him from further harm. A few hours earlier, the hubby and I receivedContinue reading “Hitting the Reset Button”

Retracing Our Footprints

I spent last weekend filing documents that have piled up over five years. Being a parent is a full time job on top of a job. Being a special needs parent is like having an extra job on top of parenting – managing school and service appointments, taking your child to appointments, keeping track ofContinue reading “Retracing Our Footprints”

Escape Room

“What am I escaping from?” asked the exasperated dad after the resort staff asked if he wanted to try their Escape Room game. The staff asked another dad, walking quickly with a kid in tow and he asked, “Do I get to escape from this?” He looked at me with T in one of hisContinue reading “Escape Room”

Waves

“I get back up and I do it again. I get back up and I do it again…” One of my wishes with our vacation is to overfill T’s bucket with happy memories – so he has them during grayer days. I loved watching T play at the beach, with its soft white powder andContinue reading “Waves”

Helping Kids Navigate Difficult Change

Change is hard for kids. It was heart wrenching to see T process an unexpected change this week. Change is harder for kids such as T. If you hang out with the hubby and I, you’ll notice we give T ample warnings – 10, 5, 1 minutes before we move to the next activity, especiallyContinue reading “Helping Kids Navigate Difficult Change”

The Diagnosis

After 5.5 years, we’ve answered a longstanding question about our son’s life and then uncovered more questions. When T was 18 months old, he received a prognosis of at-risk Fetal Alcohol Spectrum Disorder (FASD). It’s been quite the journey since as the hubby, T and I experienced the highs and lows of life with aContinue reading “The Diagnosis”

“At least he said, ‘Please’!”

Be clear about what you ask for. The photo above was taken when T was 1 and attending an Early Years program, part of our routine to help develop his speech. He’s come a long way since! These days, I appreciate that T verbalizes his feelings, rather than internalizes things. He’ll often let you knowContinue reading ““At least he said, ‘Please’!””

“You’re Frozen When Your Heart’s Not Open”

When faced with fear and worry of the unknown, the natural response is to numb and protect your heart from potential pain. I remember the early days of reading up about FASD and randomly bursting into tears while watching a toddler T sit or play. It felt overwhelming, stressful and lonely. But the heart hasContinue reading ““You’re Frozen When Your Heart’s Not Open””

Resolutions

Through virtual schooling, T learned about setting goals for the New Year. The related assignment is the last thing we had to catch up on and complete this weekend before we return to in-person learning this coming week. I often write about how we struggle with T to sit still and concentrate long enough toContinue reading “Resolutions”

Little Community Helper

Kids can be self centered and I often think about how to teach my little T about good deeds. Last fall, we ordered a collection of the first six Clifford books, because T was interested in the adventures of the big red dog. One of the first stories was “Clifford’s Good Deeds.” The story madeContinue reading “Little Community Helper”

Touchscreen Generation

Nothing ages you like teaching your Generation Alpha son how to use a computer mouse. Our 6-year-old T was born into a world that already had Instagram, wifi, and iPhones. I remember being once amused when he was three years old and trying to use the TV by touching the screen instead of using theContinue reading “Touchscreen Generation”

Walking on Thin Ice

My six-year-old recently asked me what the word “pressure” means? Since we watched Disney’s “Encanto,” he’s been humming his favourite moment, when Luisa sings the song “Surface Pressure.” We had the song on repeat while driving. I told T that when you feel pressure, you feel very worried you might not do a good job.Continue reading “Walking on Thin Ice”