After a cloudy few months, we’re spending March Break at a place of happiness. We booked this family getaway last October, before I knew one of my closest friends would lose her brave battle with cancer in November. Never would I have guessed Ma would pass away a few weeks later. For better or worse,Continue reading “Surga”
Tag Archives: FASD
Celebration of Life
On Saturday, surrounded by family and friends, near and far, we said goodbye to Ma. It was celebration and catharsis. I am thankful for the last few weeks to reflect and to remember what an inspiring life Ma lived, full of love and accomplishments. Loved ones from afar, including Philippines and Guam, joined the serviceContinue reading “Celebration of Life”
Angels in the Infield
During school lunch a few weeks ago, T proclaimed to his class he was refunding his parents. His CYW recounted to us with amusement, via text message, that T ranted out loud that he had told Daddy (the hubby) many times that he didn’t want meatballs for lunch and still got them. Due to thisContinue reading “Angels in the Infield”
Finding Connections
As social creatures, we yearn for connection and we thrive when we have psychological safety. This was the key takeaway from a virtual talk by FASD expert Nate Sheets I attended during a recent caregivers group get-together. I’ve followed Nate’s work for a while but it was my first time attending a live talk andContinue reading “Finding Connections”
The Darkest Dark
We remind our little guy that he is stronger and braver than the monsters in his head. During a recent Sunday morning, around 1:30, I was woken up by the hubby having a fit. T had turned on all the lights in the house, downstairs included, and was up playing with his toys – becauseContinue reading “The Darkest Dark”
Life is a Gift
Live and love as if it’s your first and last day on Earth. Our caring, curious, funny and not-so-little guy turned 9 this weekend. How is that possible?! The past year brought adventures and hard losses and through it all, he steps forward with his fun-seeking, resilient and endlessly energetic spirit. Our consecutive hard lossesContinue reading “Life is a Gift”
A Thousand Words
Sometimes, a picture sums up life’s depth of emotions better than words ever could. Yesterday, we had lunch with family to celebrate Ma and my aunt’s birthdays. Ma’s absence was noticeable. Afterwards, my uncle, recently returned from the Philippines, gave me Ma’s urn. It was a strange feeling holding it in my hands. The logicalContinue reading “A Thousand Words”
Ray of Light
We took T to his first concert, Madonna’s Celebration Tour, and it provided a needed holiday. Our family had a challenging start to 2024 and this show was a ray of light during gray days. We prepped T for his first concert by looking at photos of the venue and show and speaking about whatContinue reading “Ray of Light”
Personal Affection Day
On Friday, T asked to stay home instead of going to daycare for PA Day. “I just need a break,” he said. On Professional Activity (PA) Days, kids get a day off school and teachers focus on professional learning. My first instinct to T’s request was no. The hubby and I had work, remotely atContinue reading “Personal Affection Day”
Far From Home
During the holidays, I unexpectedly flew to the other side of the world to visit my ailing Ma. Ma moved back to the Philippines in July. In early December, her myositis autoimmune disease, which attacks and weakens her leg muscles, resurfaced and a few days before Christmas, she had a fall at home. On ChristmasContinue reading “Far From Home”
The Gift of the Redo
Christmas is a time for forgiveness and it is the kindest gift one could give and receive. When we were having rough patches this fall with T – a part of the FASD parenting life – we met with our developmental pediatrician, who has been supporting T since he was 18 months. In addition toContinue reading “The Gift of the Redo”
“I Believe in the Power of You and I”
We attended T’s wonderful school holiday concert this week and it moved me to tears. The school concert was the first since the pandemic, and T and the kids did such a great job. It brought back wonderful memories of holiday and Spring concerts, pre pandemic, when T was in preschool and kindergarten. I rememberContinue reading ““I Believe in the Power of You and I””
In the Dog House
In my next life, I want to be a therapy dog. I took part of Friday off to take T to a PA Day paw therapy program hosted by the amazing Surrey Place team as part of their ongoing services for children with FASD and caregivers. T and I loved the horse therapy program theyContinue reading “In the Dog House”
The Writing Parlour
Helping my third grader build writing skills is like making pizza; layer one ingredient on at a time. The process sometimes feels like a struggle with a disability like FASD layered on top – but it nonetheless feels like I’m watching something special grow from infancy. It brings back fond memories of the early days,Continue reading “The Writing Parlour”
Why Stories Matter
Stories and personal testimony can inform, inspire and be a lifeline to someone. December 1 marks the fourth anniversary of this blog and my first post, introducing T’s prognosis and our family. I started my blog as a way to process my thoughts on the FASD parenting journey and to raise awareness and advocate forContinue reading “Why Stories Matter”
Big Brother
This is the start of a beautiful friendship. Last fall, T’s child and youth worker made the excellent suggestion to look into a Big Brother-style mentorship program for T. I believe in mentorship and surrounding T with positive influences is important, because making friends is hard for kids with FASD. Despite best efforts, we haveContinue reading “Big Brother”
Love and Karma
The energy we send into the universe is the energy we invite into our lives. I found this belief challenged the past few weeks, because of T’s chaos – meltdowns, foul language, rude attitude, defiant behaviour at school. It was draining – and at one point, I told the hubby I did not have theContinue reading “Love and Karma”
Smells Like Teen Spirit
A creature is growing in our home that is more horrifying than the supernatural or undead. Saturday morning, I was enjoying coffee in the dining room when I heard the hubby say with alarm, “Oh my God, T, you’re turning.” It was a full moon on Halloween weekend. Did we have a werewolf in ourContinue reading “Smells Like Teen Spirit”
To Teachers with Love
The influence of a great teacher is longlasting. Thanks to Mrs Smith in Grade 3, who introduced us to daily journal writing, I developed an early start to expressing myself through words. Tough but fair and kind teachers, like Mrs Ezer in high school, were whom I learned the most from. I keep it touchContinue reading “To Teachers with Love”
Enjoy the Silence
I’m going to tell you a secret: It’s ok to say no, to put your needs first, to self indulge. It’s become a morbid joke that when I plan self care time, something bad happens. Christmas 2019: T got sick for a week. Christmas 2020: Ma had a nearly life-ending stroke on the first dayContinue reading “Enjoy the Silence”
My Life With T 