After 5.5 years, we’ve answered a longstanding question about our son’s life and then uncovered more questions. When T was 18 months old, he received a prognosis of at-risk Fetal Alcohol Spectrum Disorder (FASD). It’s been quite the journey since as the hubby, T and I experienced the highs and lows of life with aContinue reading “The Diagnosis”
Tag Archives: FASD
“At least he said, ‘Please’!”
Be clear about what you ask for. The photo above was taken when T was 1 and attending an Early Years program, part of our routine to help develop his speech. He’s come a long way since! These days, I appreciate that T verbalizes his feelings, rather than internalizes things. He’ll often let you knowContinue reading ““At least he said, ‘Please’!””
Touchscreen Generation
Nothing ages you like teaching your Generation Alpha son how to use a computer mouse. Our 6-year-old T was born into a world that already had Instagram, wifi, and iPhones. I remember being once amused when he was three years old and trying to use the TV by touching the screen instead of using theContinue reading “Touchscreen Generation”
Walking on Thin Ice
My six-year-old recently asked me what the word “pressure” means? Since we watched Disney’s “Encanto,” he’s been humming his favourite moment, when Luisa sings the song “Surface Pressure.” We had the song on repeat while driving. I told T that when you feel pressure, you feel very worried you might not do a good job.Continue reading “Walking on Thin Ice”
Losing Like Halle Berry
Having a sense of humour about when things do not go as planned is generally one of my instinctual responses in life. Dealing with loss and feeling like you’re failing is part of being a special needs parent. In the last few weeks, it’s been harder to find levity during the challenging moments. We’ve beenContinue reading “Losing Like Halle Berry”
Circles
Circles appear as symbols of power, movement, change and balance in our lives. Some see circles as a symbol for the wholeness of self, timelessness, infinity and God itself. Circles represent the passage of time. A year is a full orbit of Earth around the sun; hours pass in a circular motion around a clock.Continue reading “Circles”
Light Up the Dark
The colorful ghosts of Christmas past emerged this weekend, sparking wishes for future memories. After I did my Friday night groceries, I returned home to Christmas cheer thanks to T and the hubby. It’s only mid November, but it’s family tradition to put up the tree, decorations and lights after Remembrance Day. Christmas is withoutContinue reading “Light Up the Dark”
Let’s Talk About Medication
The text from my pharmacy lets me know that my METH is ready for pick up. It’s an auto-generated notification that includes the first four letters of the medication name in capital letters. I chuckle about this immaturely when the refill is made every few weeks. In seriousness, I’m talking about methylphenidate – the genericContinue reading “Let’s Talk About Medication”
Love Is Half the Battle
“Love is a wonderful healer but it cannot undo brain damage.” When starting the FASD journey, I came across a parent’s testimonial that struck a deep chord. Sarasota-based Kathryn Shea wrote a compelling story about raising her adopted son Seth. Stories like Kathryn and Seth’s made me feel part of a larger whole, less lonelyContinue reading “Love Is Half the Battle”
The Promise of a New Day
This Thanksgiving, I am grateful for the fresh start that each new day brings. The last two weeks have been rough with T. I don’t know if it’s because the honeymoon phase at school has passed or if he’s finding the transition period challenging but we’ve had rough patches on an almost daily basis. DuringContinue reading “The Promise of a New Day”
Honey Harbour
If it’s bitter at the start, it’s sweeter in the end. I reflected on this during a two hour drive home from Honey Harbour, a scenic set of islands along Georgian Bay, where the hubby, T and I spent Saturday with my aunt and two cousins. We woke up early to ensure we arrived atContinue reading “Honey Harbour”
Low Tide
One great advice I’ve received about finding balance in life is a metaphor about tides. Tides are described as “the rise and fall of sea levels caused by the combined effects of the gravitational forces exerted by the Moon and the Sun, and the rotation of the Earth.” My colleague’s advice is deceptively simple butContinue reading “Low Tide”
Trying Differently Rather Than Harder
On FASD Day, I’d like to share an important lesson I continue to learn as a special needs parent. FASD Day is observed annually on September 9 and has grown into a month-long event: FASD Month in September. FASD stands for fetal alcohol spectrum disorder, a lifelong disability that affects the brain and body ofContinue reading “Trying Differently Rather Than Harder”
Why Struggle is Good for Kids
“The struggle you’re in today is developing the strength you need for tomorrow.” I reflected on this Robert Tew quote after a lifeguard at the public pool called us out after he noticed T struggling in the water. The outdoor pool has been our savior the last two summers. We are there every other dayContinue reading “Why Struggle is Good for Kids”
The World Is Larger When You’re A Kid
Never lose your inner child, I thought, as I took T 30 years down memory lane. Last Saturday morning, I took T on a nostalgia visit to my elementary school playground. I was a bit over a year older than T is now when I last played there 31 years ago. It was the firstContinue reading “The World Is Larger When You’re A Kid”
The Odd Duck
You often need to look no further than to nature for a little perspective. T and I went for a late morning walk to enjoy the sun, fresh air, and to get out of the house. Outdoor spaces have been a lifesaver during this pandemic. On some days, the thought of outdoor time is whatContinue reading “The Odd Duck”
Having Fun With Puppetry and Video
T and I spent this rainy Sunday being silly and creative with filmmaking. T and I made up what we were doing along the way – and it was more fun this way! We put chairs together and draped our brown blanket – usually used for building forts – over them and it became aContinue reading “Having Fun With Puppetry and Video”
Three Wishes
If a genie gave us an opportunity, would we wish away our child’s invisible disability? I thought about this question all weekend after T and I watched Disney’s Aladdin. On Saturday morning, with a bowl of popcorn, we snuggled on the couch and watched the movie T had recently enjoyed in class. I chuckled whenContinue reading “Three Wishes”
Making Positive Parenting Work For Our Family
One time, after I responded to T’s tantrum in not-the-most dignified way, the hubby asked, “So how’s that positive parenting going?” As I chopped vegetables, I told him to leave the kitchen or I was positively going to stab him. There are countless resources that describe positive parenting in great detail. I like Kars4Kids’ Parenting’sContinue reading “Making Positive Parenting Work For Our Family”
What Our Explosive Child Teaches Us About Love
After breakfast, I handed T a heart-shaped box of Smarties and asked him to be my Valentine. To me, Valentine’s is about celebrating love in all its forms, including love between family. How fitting then that this year’s Valentine’s is sharing a double billing with Family Day long weekend in Canada. This weekend has soContinue reading “What Our Explosive Child Teaches Us About Love”
My Life With T 