The hubby and I binged the latest season of Cobra Kai over two nights.
The Netflix hit series continues the story of The Karate Kid movies 35 years later.
I never watched the films but the show resonates with me, because it tells a compelling coming of age story.
The aspect of the story that resonates with me is when the youth characters – often troubled but full of potential – find a new path through the mentorship of the adult characters, who are also looking for redemption.
Thinking about T, a boy with great potential and challenging needs, you can see how I think about my hopes and fears for his future when I watch the show.
Every youth can benefit from a mentor.
A mentor is described as a caring and responsible adult who can help improve the well-being of a youth by serving as a role model to support their academic, personal and social wellbeing.
In T’s current daily life, he has many mentors – teachers, child and youth worker, daycare staff, and of course, the hubby and I.
Even at age 5, the hubby and I already see and anticipate some of the challenges he’ll have as he comes of age – emotional regulation, academics, maintaining friendship, etc.
A mentor is not a fix-all solution but they can help guide T along the right path, to occupy his time in meaningful and purposeful activity, and to also serve as someone he can look up to and model his behaviour after.
I think about the mentors in my life. One, in particular, gave me a chance when I graduated from university at 23. I can attribute the wonderful blessings in my professional life thanks to this person giving me an opportunity and mentoring me.
I wish for the same in T. Because I do see it – and as evidenced by our painful first day of return to homeschool hell today (more on this later) – that he is going to need hands-on support in the years to come.
I believe that everyone has potential and that one key ingredient in helping one maximize their potential is having someone believe in them and guide them.
Thankfully, we live in a city with wonderful programs for youth, including mentorship programs.
I’m aware of programs specifically for youth with special needs. By the time T is a youth, these programs will likely be even more widely available.
I’m thankful T already has great mentors in his life and I hope for this in every step along his life – especially during the challenging times.
And maybe we’ll get T involved in karate as he gets older too! He certainly has the energy and angst to burn.
The wonderful thing about a new year is that it presents an opportunity to reflect on the steps you’ve travelled and to aspire about the steps you will take in the year ahead.
2020 has been filled with slithering snakes – the pandemic, lockdown homeschooling, family health crisis just to name a few.
But it’s also been filled with many uplifting moments. And these are the moments I choose to carry with me into 2021.
As we depart 2020, I’d like to say thanks to the ladders that helped us along the way:
Thank you for Team T – a wonderful group of teachers, educators, and health and social service professionals – who supported T, the hubby and I through a challenging year. The tremendous gains he’s made and big life changes, such as starting medication for ADHD, were made possible with their support.
Thank you for public outdoor pools. The 4-5 days a week of swimming in the summer heat – and seeing T’s joy and confidence being in the water – are among my most treasured moments of 2020.
Thank you for the quiet moments with T – the countless walks in the sun, the puddly rain, the radiant colours of fall, and the snow. Life with T is often loud and frenetic, so these quieter gentler moments are always a welcomed balance.
Thank you to family, friends and colleagues for helping us get through the speed bumps.
And thank you to the lovable little pest T, for continuing to teach the hubby and I valuable lessons every day and giving us the drive to keep heading forward and embracing life for all its good and bad.
T lost his first tooth last night! You’d think by the loud screaming from his room, something terrible had happened, but it was just his excitement.
Naturally, he became very excited about his first visit from the Tooth Fairy and said he wanted to stay up so he could say hi to her – and to which I quickly replied, “Oh no, you’re not!”
He flashed his toothless smile with pride. It was adorable and you could already see his first adult tooth half emerged from his gums.
A colleague once told me to enjoy the childhood years, because they fly by – and they really do!
So indulging in a make believe fantasy such as the Tooth Fairy – although she’s very real in T’s mind – is just part of the joy and wonder of childhood.
The hubby put T’s baby tooth in an envelope and asked T to put it under his pillow. I could hear the excited conversation from my room while the hubby sat with T till he fell asleep.
After he fell asleep, the hubby asked me for cash. I asked him how much a tooth is going for these days and he said, “$2 to $5.”
I balked and gave him $2. I get that we need to account for inflation and cost of living increases but this was the first tooth of many more to come! I ain’t going into poverty over the Tooth Fairy.
The hubby, in his wonderfully creative and thoughtful way, printed a certificate he found online (pictured at the top) that he presented as from the Tooth Fairy.
This morning, T excitedly went into the hubby’s room to show him what he got. Then he came into the guest room, where I’ve been staying as I’ve been visiting Ma in the hospital.
Seeing the wonder and awe in his face was worth the innocent charade we’re indulging him in.
T asked for the certificate to be placed on the fridge and said he will put his $2 into his piggy bank.
A visual tool provided by T’s behaviour therapist that we use to help him learn how to brush his teeth.
Despite the unrelenting challenges that keep coming at us, the hubby, T and I enjoyed a quiet and peaceful Christmas.
T’s excitement was palatable. The last two weeks, we counted down the number of days till Christmas.
“What’s 9 minus 1?” I asked him at one point last week.
“I dunno,” he responded.
“If there were 9 days until Christmas and 1 day has passed, how many days left until Christmas?” I rephrased the question.
“8 days! 8 days until Christmas!” He exclaimed with unbearable excitement.
The trick with teaching kids math, you see, is about putting things into context for them!
Before bedtime on Christmas Eve, T put out a glass of milk, cookies and carrots for Santa.
After he passed out, I took out the gifts Santa (aka the hubby) had bought and meticulously wrapped for T and put them under the tree and wrote a note of thanks to T from Santa.
Childhood is so short and T will one day outgrow Santa, so might as well have fun while we can.
T gave us the best Christmas present by letting us sleep in till 9. Then he charged into the room and said, “Time to wake up. It’s Christmas!”
We put on our Santa hats, took a few family photos and then opened gifts.
T got a whack of gifts from his parents, grandparents, family members and our friends who either mailed or dropped them curbside.
We’re so blessed with an amazing support group of family and friends. Since learning about my Ma’s stroke, friends and cousins have dropped off lasagna, fried chicken and other care packages.
They all understand that time is even more of the essence and gifted us time for the coming weeks.
“What do you think the chances are of someone dropping off a cooked turkey?” I asked the hubby jokingly.
Ma and my aunt each gave T a red envelope, a Chinese tradition of putting money into a lucky red envelope.
Ma is always the first to admit she doesn’t know how to buy gifts, so she gives money to help invest in his future education instead.
I will admit I felt a bit embarrassed and a tad appalled at how many gifts T got. It probably was more than I ever got in total as a child.
I strongly believe in trying not to spoil a child, because they will grow up not appreciating things. But then I let that feeling go this year and I allowed the hubby to go over the top with Christmas, because of how shitty of a year it’s been.
The hubby and I don’t usually exchange gifts but this year we did, again cuz, you know, pandemic.
I asked for Junji Ito’s horror graphic novel, Remina. Because nothing gives hope and cheer like a story about a planet-eating planet.
The hubby and T then dropped me off to visit Ma at the hospital. It was so nice to see her.
She is doing so much better but we still have a long recovery ahead. But we are thankful for every day that she gets through.
I got back home in the late afternoon and just relaxed – alternating between quiet time by myself and playing with T and his new toys.
Whoever invented self-flying drones for little kids must’ve really hated their parents. Jokes aside, it’s actually a really cool toy!
We wavered back and forth between having family over for dinner but we ultimately decided to respect lockdown restrictions and kept it to our family, because we didn’t want to risk anyone getting sick.
The hubby prepared a delicious turkey dinner, his specialty.
I’m not usually a wine or alcohol drinker, but a friend gifted us a nice bottle of rosé – and cuz, you know, pandemic.
2020 has tested our family like no other but the holidays remind us that a family endures and perseveres.
I am hanging onto that hope as we look ahead to a brighter new year.
Wherever you are joining T, the hubby and I from, we want to wish you all a Merry Christmas!
This Monday, Jupiter and Saturn came within the closest distance to each other in 800 years, forming a Christmas star.
It lit up the sky like a white diamond on the shortest day of the year. It was a symbol of hope that brighter days are, quite literally, on their way.
2020 has been such a rollercoaster year. While it’s nearing its end, the challenges continue to come at an unrelenting pace – whether it’s our province re-entering a full lockdown or unexpected family hardships.
Despite this feeling of dark heaviness, I am so thankful there are reasons to feel gratitude and hope.
Firstly, T is in daycare this and next week – so it takes the pressure off us to look after him, as I had originally booked these two weeks off from work to recharge.
I’m spending the free time just relaxing when I can, because my family is about to embark on a marathon as Ma starts her recovery.
Part of my wellbeing regime is listening to music. Australian pop star Kylie Minogue’s music always cheers me up.
I listened to her song “White Diamond,” written a decade ago when she was facing cancer. Its lyrics resonated with me in a new way.
I reflected about diamonds. They are beautiful jewels that are formed deep within the Earth’s darkness from carbon being subjected to intense heat and pressure.
That’s really what this past year has been all about. This is what adversity is about. These moments take us – as individuals, as a collective – and subject us to such incredible pressure, while burying us within a deep darkness that we feel like we’ll never get out of.
But for those of us who get through it, we become richer and brighter because of these experiences and we radiate with a renewed sparkle because of the valuable lessons we’ve learned.
I don’t quite know what will happen in the road ahead, but I know we will get through it somehow and be all the better for it.
White Diamond by Kylie Minogue
I know that it’s getting too much, baby But you don’t need the words to say Sometimes you feel you’re at the end of the line But tonight it’s gonna fade away
You’re looking out from the darkness Feeling so alone and you need a flare Well, I’ve got the light that’s gonna treat you right And illuminate what’s already there
Understand I will be there for you Understand I’m a diamond for you A white diamond for you
And just like a burning radio I’m on to you Your spell I’m under In the silver shadows I will radiate And glow for you
What you see and what it seems Are nothing more than dreams within a dream Like a pure white diamond I’ll shine on and on and on
Life can change in the blink of an eye: our Ma had a stroke on Friday.
Yesterday, Friday morning, was a normal one. By the evening, I was in the Emergency ward receiving quite the unexpected news.
Thankfully, she is awake and seems to understand what’s going on. But her speech is slurred and mobility impacted.
My sister and I are taking turns watching her as we want her to be with family 24/7 during this critical period. Due to COVID, only one guest can be with a patient at a time.
We’re thankful we have such a supportive family. This morning, my mom’s siblings and our cousins around the world joined together for a short Facebook video chat. It made my mom happy and we were relieved she recognized everyone and knew it was Christmas time by greeting them.
I was delirious by the time I went to bed at 11 this morning and I feel more human after sleeping now that I’m back for my second evening shift.
Ma is now sleeping so I’m filling the time as I always do by trying to keep busy.
When I’m stressed out, I try to maintain calm and order by planning.
At 11 last night, I emailed colleagues instructions to look after in my absence.
At 4 this morning, I emailed the hubby to ask him to set me up – clothes, bottled water, etc – in our guest room and to move T’s stuff out of his bathroom into ours and mine into his. I want to semi quarantine myself into that corner of the house as I will be spending lots of time at the hospital over the coming weeks.
I am doing all of this – including writing this post – because I’m trying to distract myself and not to think about more serious matters.
T could sense that something is different. The hubby and I told him that “Ama” is sick and is in the hospital. That’s why I have to be out of the house to take care of her.
He was very calm and compliant today because he is likely picking up on the somber mood.
He left me alone while I slept most of the day but did open the door to see how I was doing at around 5pm.
I started to tell him that Ama was sick and then I started crying. I couldn’t help it.
“Why are you crying?” He asked.
“Because I’m sad and scared,” I said.
“Grown ups don’t cry,” he said adamantly.
I kind of chuckled when he said that.
When we were getting ready to drive to the hospital to drop me off tonight, I didn’t need to ask T 10 times to put his shoes on. He just did it at the first ask.
He also did a short “Feel better, Ama” video that I shared with Ma this evening.
After Ma saw the video, she told me, in a still slurred way, “I want to stick around to see T and the little kids (in our family) graduate.”
I just lost it. I tried so hard not to cry but couldn’t hold the tears back.
Then she said, “I will be fine. Because I am the survivor type.”
We’re not out of the woods and the next few days will be scary. But it is reassuring that she still has her melodramatic flair.
An unexpected connection with a seven-year-old boy is teaching T about the highs and lows of friendship.
It started two months ago, in warmer weather. At that time, T had developed a bond with two older boys, whom he played with regularly after I picked him up after daycare.
Then one day, S started to play at the park with his dad.
For the first few days, we each kept to ourselves. Then I encouraged T to play with S and to include him with the older kids.
As the days drew shorter, the older kids stopped coming to play. So it was just T and S.
They started to play together. T would initiate his game of tag and S would initiate his own games.
S’ dad and I slowly started to talk to each other and found common interests, like politics.
I learned that S was doing virtual school and was a single child like T.
As with any new relationship, I initially felt on edge about T when he’d have one of his moments; like screaming when he doesn’t get his way or getting into S’ personal space and annoying him.
The worst moment so far was when he took S’ glove, because he felt like it, and was chased by S. S was angry and punched T and then T got upset and pushed him to the ground.
S’ Dad is very understanding and in return, I ask T to apologize for his moments.
But interestingly, it’s not always T who has the moments. I notice S has a strong personality like T and stubborn moments of not giving into T’s demands too.
And you know what, it’s very refreshing to see T get a dose of his own medicine. And to use them as teachable moments.
Recently, while playing in the field, S accidentally threw a hard snowball at T’s face. Cue the crying and tears.
I was just glad it wasn’t the other way around!
But what I’m most thankful for is that it’s been mostly wonderful moments between them.
I love how excited T gets when he runs out of daycare towards the playground to see S.
There was a stretch of three consecutive days when S did not come out to play because of bad weather.
T was sad and cried that he missed S. Then on the day S came out again, T ran so fast to him, screaming, “S!!!”
I am very appreciative the Dad seems like a down to Earth and level headed parent. The fact that T’s hyperactive and loud personality and frequent outbursts have not deterred him from continuing to bring S out to play with T has been a blessing.
He’s confided a few times about his concerns about S. So I openly shared T’s own prognosis and challenges.
Last week, they invited T and I to join them sledding at the park by their house – down the street from T’s daycare. And it was a lot of fun!
I had a chuckle when T’s mom joined us and asked, “Are they friends or enemies today?”
I guess that’s the sign of a good friendship is when you can navigate the ups and downs and still want to hang out with each other.
And I am so thankful for that.
And I love that even during these super cold winter nights, the two boys are still playing in the dark and dimly light playground – having it all to themselves because all the other kids are staying warm inside.
During one recent outing, S asked T if he could go over to their house after the coronavirus goes away.
T then asked if S could come visit our home.
I found that such a sweet moment.
As we left the playground that evening and they walked us to the parking lot, T and S gave each other a big hug.
I shared some photos included in that post below: Beautiful beaches, amazing scenery, delicious seafood, island hopping, ziplining and more.
We’ve always dreamed about exploring the world with T and we look forward to taking him to visit Asia one day. It gives us hope to think about traveling again one day post pandemic!
PS. If you’re looking for another excellent travel blog, I really enjoy Wandering Canadians, which has provided a wonderful way to explore the beauty of our local provincial parks in Ontario.
The Chocolate Hills in BoholThe White Beach in BoracayThe deck we sat at for breakfast overlooking the water at the small cottage resort in BoholI still dream about the curry crab and shrimp dinner.Ziplining Superman style in CDOBlue starfish found while snorkellingSeafood cooked fresh at the market after you buy it
“There needs to be a lot more emphasis on what a child can do instead of what they cannot do.”
I saw this quote shared recently on Twitter by Surrey Place, the wonderful agency that has been supporting T since he was 1.5.
I reflected on this quote by Autism spokesperson and advocate Temple Grandin this past week as we’ve had a particularly hard week with T.
His behaviour felt out of control. Simple tasks like getting his teeth brushed , getting him dressed after his shower and winding down for bed all felt so draining.
His daily school log seemed less positive, with lots of instances of him getting into peers’ personal space or being restless and not sitting still when he’s supposed to.
Other than irritation at T’s behaviour, I was not bothered by the last week.
We’ve been down this road before and I know sunnier days are on their way. Just have to ride it out, learn from these moments, and move on.
Raising T – a child with great potential but challenging needs – may seem like a dance of two steps forward, three steps back.
But if anything that the last year has taught me, it’s that we gotta stop focusing on the downside. When you’re looking down, you often don’t see the path ahead of you.
And there’s nothing wrong with taking a step back. Sometimes, taking a larger step back allows one to take stock of everything that they’ve done and the road they’ve travelled.
I don’t care about perfection or being the best. What I care about when it comes to T – and to myself too – are the incremental gains.
Every day, I pray that he grows a little more each day – mentally, physically, emotionally and spiritually.
I believe every child has a potential and that every child has their own journey. The yard stick we should measure them against is not with another child, but with themselves.
And it’s the hubby and my job to guide him towards his potential in life.
I’ve been doing a lot of reflection around potential, because another year is wrapping up and this dumpster fire of a year will soon be behind us. Thank Christ.
It’s also been a year since I started this blog. It’s become a wonderful hobby and therapy and to do my part to raise awareness.
Thank you to you for following along and to those who take time to comment and to share your journey and/or words of encouragement.
To those of you following along more quietly, the support has also been very encouraging!
I recently went into my office, the first time since lockdown began in March.
A package had been left on my desk. It was a parcel from a former supervisor, now retired.
She gave me a Slap-On Sanitizer, an invention by her son that gives kids a pragmatic way to carry and easily use hand sanitizer during these germy times.
Along with this gift was a handwritten letter sharing with me that her son, like T, had been kicked out of his school at a young age and he ended up doing fine, even inventing a product.
I really appreciated hearing that wonderful story and it reminds me that while I don’t know what the future holds for T, there is always reason to focus on potential and on the bright side.
The hubby and I took out T’s baby book a few Saturdays ago. We were feeling nostalgic. For the first time, we shared its contents with T.
Contained in this scrapbook are photos and letters from T’s first 14 months of life, before he moved in with the hubby and I and became part of our forever family.
The book was lovingly put together by T’s foster mother, who had been with T since his second month of life.
The hubby and I treasure this book so much, because it provides us with a link to the moments in T’s life that we were not a part of.
When we first open the book, we see a lovely letter T’s foster mother typed up that described T’s early days – details about his birth mother and how T came into the care of his foster family.
Throughout the book, there are wonderful photos of T in his early moments of life.
I love the photos of T with his foster parents, foster brother and foster siblings, because it makes me happy to remember that he had a happy, loving and stable life before he came into ours.
I treasure the photos of his firsts: Easter, Halloween, Christmas and letter from Santa; first smile at 2 months, first time sitting at 4 months, first time pulling himself to a stand at 11 months.
We still keep in touch with the foster family, because it’s important to us that T has a complete sense of self. We last saw them back in February – before the pandemic lockdown – to celebrate T’s 5th birthday.
Since T was three years old, I started incorporating a simplified version of T’s adoption story into our bedtime story routine called “The T Story.”
This year, T started to ask deeper questions about this story and so I used the word “adoption” for the first time and told him that he was adopted by the hubby and I.
Then he started to ask more questions about his foster family, about why we adopted him, about whether or not he was going to go back to his foster family.
I think it’s wonderful that he is asking these smart and thoughtful questions. It means he is ready to have these conversations.
It doesn’t always feel comfortable to answer his questions. But the hubby and I always keep it real and age appropriate with him.
I can tell that T is processing these tidbits – these puzzle pieces that form his big picture of himself.
That’s why we shared the scrapbook with him for the first time a few weeks ago.
It warmed my heart watching him look at the pictures and to see that he was so loved from the beginning of his life.
On the second page is the only picture that we have of his birth mother. The hubby was open and honest that this was his mom.
We noticed that T was very quiet. He did not react or say anything until he moved onto the other photos in the book of himself and his foster family.
I’m sure his mind was processing what it all meant.
It is a story to talk to him about on another day when he is ready.
I’m grateful to work from home during the pandemic, because I can stand on the steps every morning and wave to T as the hubby drives him to school.
As I watch the car disappear down the street, I say a silent prayer. I ask for T to have a positive day that includes incremental growth, learning, friendship and happiness.
Most days are good. Some days are great. And some are not as great, even disastrous.
It’s hard to believe it’s been almost a year since I started this blog.
One thing that motivated me to start this blog was this time last year, our school board cancelled the specialized kindergarten program, of which T was around one of the 25 or so kids in 7 classrooms across the city that benefitted from the early intervention supports provided on social behaviour so that kids could be better prepared for grade school.
I wanted to do my part to advocate for T and for children like T – in an anonymous way that honours his privacy.
When you are a parent – special needs or not – you are so mired in the daily mineutia, the weeds of the trenches, that you often forget to step back and look at the big picture.
As I sit here at our dining room table sipping my morning coffee and watching T play with Balloon Santa, I see a tremendous growth in him compared to this time a year ago.
His language skills are great. I love that he and I can have fun and deep conversations and that he asks me hard questions.
The hubby and I see his pre-reading and pre-math skills emerging. His child and youth worker recently told us that he is above average in his class with reading and math.
While he still struggles with hyperactivity and focus, with the combined help of his child and youth worker, using behavioral modification strategies, and starting medication this summer, he’s come such a long way with being able to sit still and focus on a task.
While getting him to comply with daily routines can still be a patience-sapping challenge, there are far less meltdowns.
I try to be honest when I shared the ups and downs of raising a child with great potential and challenging needs.
Often times, this may give the impression that T is all problems and challenges.
I would say that life with our T is mostly 80% great and 20% very hard. I would consider that a good ratio!
One of the most important lessons I’ve learned this past year is to celebrate every incremental success together.
About a week ago, the hubby received an excited call from T’s child and youth worker. She told him that T had his best day ever at school.
Every night, when T and I come from daycare, the hubby is standing in the foyer with his arms open and a smile on his face as the door swings open. T runs to the hubby and gives him a big hug.
That evening, T got an extra long and tight hug.
We read – as we do daily – her daily report in T’s school log out to T.
“This was the best work I have ever seen T do! He was very focused and did not scribble all over the page! Great work T!” She wrote. “T did an excellent job reading today. He went over to the teacher without any complaint! Great job!”
The hubby finished reading and T had a proud and self-satisfied smile on his face.
Without skipping a beat, he asked, “Are you going to tell Santa?”
I told her without hesitation, “No. T is the best thing that’s happened to the hubby and I.”
And I meant it. Sure, he has challenging moments – almost on a daily basis – but there is so much love and joy we get back in return.
The question made me pause because it seemed so inappropriate.
But I didn’t make a fuss, because I know my aunt loves T. Her frankness is just part of age and the Asian bluntness.
Then I told my aunt T has recently developed a wonderful friendship with a 7-year-old boy and they’ve been playing together every day after daycare in the playground.
Surprised, she asked, “Is there something wrong with the boy too? Or is he normal?”
Again, if it wasn’t for me being used to Asian bluntness, I would’ve called out the inappropriate comment. I simply replied he seemed normal and added, “By the way, T is a normal child.”
Like, what does normal even mean?!
The conversation reminded me about the challenges that parents often have with helping their families understand the reality of raising a child with special needs.
First off, the hubby and I are very blessed to have families that love T. They may not fully understand the reality of raising a child with great potential but a prognosis of at-risk FASD but the love is undoubtable.
The hubby and I are very honest about T’s challenges. We don’t hide or sugarcoat things.
One area that was challenging in the beginning was making family members understand his challenging behaviour is a result of a brain-based disorder and not because he is a bad kid and that traditional types of discipline do not work.
I can’t count the number of times when our parents or uncles and aunts have tried to discipline or call T out for his behaviour.
One time another aunt tried to lecture T when he was having a meltdown and hit her. She later sent me an email saying that we needed to be on top of T’s behaviour or it’s going to get worse. She even bought me a book on parenting!
I responded in a lengthy email explaining T’s prognosis, explained the strategies we use – including riding out a meltdown instead of throwing fuel in the fire – and asked her to take our lead in the future.
My aunt is well intentioned and has raised a daughter with Down syndrome. So she understands special needs. What helped was giving her more information about T’s specific prognosis and once she understood more about it, she now takes our lead.
It’s important to set boundaries with family.
I am always grateful for the love that our family provides T, but the hubby and I are clear that we are T’s parents, so leave the parenting to us.
We tune out unsolicited parenting advice, parenting articles, and yes, parenting books too!
We focus our efforts instead on educating family – and friends, colleagues, school staff and others – about his needs and challenges.
We keep it real, because that’s important.
We also try to challenge stereotypes and labels about “special needs.”
T is a bright, funny and caring child. He has a tremendous spirit for adventure and he’s had many amazing life experiences already.
So many positives to celebrate. I want to remind people – not just family – to focus on these while keeping a proactive eye on the areas of need.
So when I think back to my recent conversation with my aunt, it reminds me that educating family is an important part of being the parent of a child with special needs.
These conversations may be tricky and sometimes cringe-worthy awkward, but they are worth the investment in time.
We also unboxed our 8 feet tall balloon Santa, who had hibernated in our basement.
To say T was excited was an understatement. He had been missing Balloon Santa all year.
This past week, he wrestled with Santa and every day before he left for school, he hugged and kissed Santa and told him, “I love you, Santa.”
The hubby also wrapped white Christmas lights around our front yard trees, pictured at the top.
I normally find Christmas music so irksome, but it’s been so soothing this year. Give me Mariah on repeat for the next 12 months!
Our province is entering a modified lockdown at midnight tonight. We are all feeling weary of this unending pandemic. So all the seasonal cheer and light we could get, we will take it!
We got ourfirst snowfall today.
As with any snowfall that’s over 1 cm thick – it was about 15 cm today – the media start to panic.
It started to come down as T and I were having breakfast. He excitedly went to look outside.
An hour later, with snowsuits on, we ventured outside for a walk. It was so beautiful outside.
An elderly man whom I see regularly outside commented that T is always out.
I told him that I like T to get outside. I want him to be a four-season kid with Canadian grit.
We went back inside to eat lunch after and then went back out again, this time with his sled.
I love watching T have fun. He was in his element rolling around in the snow.
In addition to sledding down the hill, T loves to ride his sled down the metal slide in the playground. Cuz why not?
On cold days like today, soothing soup is what the soul calls for.
So I made this Hong Kong style borscht soup that I’ve been wanting to make for ages.
Lots of chopping but cooking helps calm and centre me. Prep aside, it was very easy to make and so delicious. Will definitely make this again!
To keep the theme going, I made Hong Kong cafe style toast with condensed milk for dessert. No picture but trust me when I say that everything tastes great with tons of condensed milk drizzled on top!
Wherever you are visiting my blog from, I wish you much cheer and light over the coming weeks. We still have a long road ahead with this pandemic, so however you are getting through these times, please take care and stay well!
During a daycare pickup this week, the staff told me T threw a toy at a boy and caused a bump on his head.
They said the parents were upset, because it’s not the first time T and this boy have had issues.
I told the staff the hubby and I will speak with T because we take responsibility for his behaviour.
Our routine is to play in the playground after pickup. Recently, there is a 7 year old boy who T has hit it off with and his dad brings him to play with T every day.
As T and I were walking to the playground, I am stopped by a man who was visibly upset. He pointed to T, who was running towards his friend.
“Is that your son?” He asked. Judging by the tone of his voice and the rage on his face, I figured out this was the angry parent.
I confirmed I was T’s dad.
He then dialed a number on his phone. A woman’s voice came on. It was his wife, who spoke in English because her Chinese husband was not fluent.
She was audibly upset and reiterated the situation that had happened.
I said I was sorry that T did that and I’ve already spoken to him about it and would speak with him again that night.
The mom said this was not the first time our kids have had an issue.
I told them that I couldn’t comment because I was not aware of the history.
“So this is the first time you’re hearing about this?” They asked, implying the daycare staff were not addressing T’s behaviour with me.
I explained that daycare staff bring up incidents but they do not mention specific names – like their son – out of privacy.
The dad was shooting eye daggers at me. It was incredibly uncomfortable.
But all I could do was reiterate I am sorry, that I take responsibility for T’s actions and that I’ve already spoken with him about it.
But they were not getting the answer they wanted. They were wanting me to agree with their implication that T was a bad child and a bully.
And frankly, I was not going there, because it was not true.
And I stood up for T. I told them that while I acknowledge that what T did was wrong, I also want them to know T is not a bad kid.
Then I apologized that I had to leave to be with my son and I politely walked away.
That incident really bothered me. I was so upset about it – for multiple reasons.
I was upset that it happened. It was a reminder that despite the many gains we’ve made, T is a work in progress.
I was upset that I had to be yelled at by two angry parents for very valid reasons and for actions that T made.
I was upset because it was another parental complaint we’ve had to deal with this year.
During the car ride home, I spoke about it with T again.
I asked him how he thought the incident made his classmate at daycare feel. He was silent. That to me tells me he was remorseful and guilty.
The daycare staff did say he felt genuinely remorseful.
This was certainly not the first time a parent had complained about T and his behaviour.
But this was the first time I’ve had an actual confrontation with an angry parent and it was incredibly uncomfortable.
On one hand, I empathize and take responsibility for T’s actions and I was genuine when I described to them the steps I would take to teach T about what he did.
On the other hand, I have to continue to be T’s advocate. These parents – at no fault of their own – have no idea about the additional challenges T has to deal with on a daily basis nor do they realize the tremendous, I repeat, tremendous gains he has made this school year with social interaction and behaviour.
I don’t expect them to care. I expect any parent – as I do – to focus on their child and their best interests.
So I get their anger.
But I am not going to go overboard with my apologies, nor throw T under the bus.
I’ve apologized for his actions and I’ve committed to speaking with him about it and to do my part to teach him to do better. And I will continue to do so in the future, because there will be more of these incidents.
But that is where I draw the line. I will continue to focus my energies on the bigger picture and the journey ahead.
I’m not looking to win a Parent of the Year Award but I most certainly am laser focused on being the best parent and advocate, along with the hubby, for T.
Five years ago, the hubby and I visited South America. Our last trip before T entered our lives included a stop at breathtaking Peru.
We visited a salt mine in Cusco and purchased a small bag of Peruvian “gourmet salt” as a souvenir. I finally opened it last night and seasoned the steak with it.
Rounding off the sides were Honey and Chipotle Corn…
… and Roasted Ruby Potatoes, Garlic and Rosemary.
And as requested by the Hubby, we had a Dairy Queen ice cream cake for dessert.
T sang “Happy birthday” with great enthusiasm and told the hubby, “You’re a good man, dad.”
We get these truly pure and genuine moments from time to time. I tattoo every one of them into my memory and heart.
We threw caution to the wind and let T have four slices of cake.
As I washed the dishes, T’s cheerful disposition turned into a screeching fit.
Despite several warnings, T stuck his finger into an empty soda can the hubby had drank and he cut his finger as he pulled it out.
Cue meltdown as the hubby took him to the washroom to clean the wound and apply alcohol.
As I lathered the dishes, I thought to myself that there is no sound more soothing than the wails of a repentant child.
T was back to normal soon enough and the two of us went for a night walk around the block. He wanted to look at the blow up Christmas train and elves a neighbour set up in his festive lawn.
As we walked, T stayed close to me, carefully on guard for “vampires, zombies, ghosts, goblins and the monsters with toilet paper on them.”
The hubby’s birthday is today.
After breakfast, T excitedly asked if we could decorate the house for Daddy. I happily obliged.
T is often focused on himself – as any child his age would be – and it’s important for the hubby and I to teach him to do good things for others.
We found leftover decorations in our basement from T’s birthday two years ago.
We blew up the 10 or so balloons we had. Then put up red streamers all over our family room. In Chinese culture, red symbolizes good luck.
T looked at the hanging streamers and said, “Looks like cobwebs on the ceiling!” It wasn’t the ambience I was going for, but T said he loved it.
Afterwards, T and I worked together to make a birthday card for Daddy.
I asked him to pick the colour – green – and to glue the white paper on top to write a message on and to fold the paper in half.
He helped write Happy Birthday Daddy, albeit backwards.
I asked him to draw anything he wanted inside. So he drew hearts – with legs and mouths – and a dinosaur along with Daddy, Papa and T.
His handwriting and drawing – fine motor skills in general – need work but these are wonderful gifts that come from the heart, even if they look like Pac-Man. And that’s all that matters!
The hubby finally woke up after Noon and T gave him his card.
T then asked his Daddy to go the Family Room. He held his Daddy’s hand and asked him to close his eyes. When we got there, he told him to open his eyes and shouted, “Surprise!”
Seeing his Daddy so happy made T happy.
I told T, “You did something very nice to make someone else happy, T. Good job!”
During the cold, torrential downpour and windy afternoon, T and Daddy put up the Christmas tree.
And so it begins.
For his actual birthday, I had planned to make this scallop recipe from the wonderful “In Diane’s Kitchen.” But I blew my budget on the steak. So I joked he was getting scallop potatoes instead!
So I made one of his fave meals instead: an Indian dish called Chicken Masala.
Shan has a great Chicken Masala spice mix that makes it easy to cook this dish. Just add chicken, onions, ginger, yogurt (I used Greek) and oil.
I normally use boneless chicken breast but we only had chicken thighs.
I love cooking with thighs, because I find the bone and skin add great flavor but the hubby hates bony meat so I had to debone it. The things you do for someone’s birthday!
Pretentious plating cuz it’s a birthday dinner.
Celebrating the hubby’s milestone birthday in a pandemic is not what we imagined.
A year ago, we daydreamed about a destination celebration. But the family time at home – and being healthy, safe and together – ended up being perfect! I wouldn’t have it any other way.
When the hubby and I met at 23, we never expected we’d see the day we turned 40. Even 30 at the time seemed ancient.
But here we are.
Thank you to the hubby for being my best friend, a great daddy to T and a wonderful person.
This past year has been exceptionally challenging and there were many tense and stressful moments. I know that T, the hubby and I wouldn’t have gotten through it without each other.
It looks like we’re headed for another lockdown. As painful as I know it will be, I know we will get through it together.
And I look forward to the adventures the 40s bring us!
During bedtime two weeks ago, T asked me, “Papa, are you old?”
“I’m older than you. Why do you ask?” I replied.
“When you get old, will you die?” He asked.
I was caught so off guard. My gut reaction was, “Are you kidding me? It’s past your bedtime. I am so tired. And I just want to go to bed.”
But of course, I did not say that. I paused and collected my thoughts.
“Why do you ask?” I asked. I was concerned. It seemed like such a dark and heavy topic for our usual happy-go-lucky boy.
I tried to remember if he had watched something on TV and I wondered if he may have heard a story from school that upset him.
“Are you gonna die when you get old?” He asked again.
I am a straightforward person – sometimes too direct – and I believe that it’s important to be honest with T and to normalize difficult subject topics, like death.
But I will say that I struggled with this answer. “We’re all going to die one day. But life has a beginning, middle and an end.”
“What happens when you die? Will I die one day too?” T asked.
“We all die one day,” I said and repeated that life has a beginning, middle and an end.
“Will I die soon?” He asked.
“I hope not!” I said. “You’re a young boy. You have a long life ahead of you.”
“I don’t want Papa and Daddy to die. Or I’m going to be alone,” he said and then started to cry.
I was able to reassure him that we are going to be here for a while and that he has nothing to worry about. I can’t guarantee that obviously, but let’s be positive here! But he fell asleep peacefully.
I was bummed after the chat – not only because it was such a dark topic, but I wish I could’ve answered his questions better.
I texted a good friend who has two young girls and she said, “Oh my God, I fucking hate the death talk!” I had quite the laugh and felt better about my own reaction.
So I read up about how to have this difficult conversation with kids, including this insightful Fatherly.com article, and I spoke about it with the wonderful child psychologist who has been supporting our family the last two years.
I kept these useful tips in mind for the subsequent times T brought up the topic – thankfully not too often since!
Be truthful and factual – When T asked me again why people die, I reiterated that life has a beginning, middle and an end and that death is a normal part of life. Things in nature like plants and animals also die. The best advice I read was to keep it factual when asked what happens when you die: “Your heart stops.”
Avoid euphemisms – Don’t say things like “You go to sleep forever” because kids will develop a fear of falling asleep. I will admit I laughed when I read that. Also avoid saying things like “They go away to a better place” because the child may think they’ve been abandoned.
Only answer what they ask – Our child psychologist says this is a heavy topic and is a lot for a child to process, so keep the response to what they ask and need to know.
Tell them you plan to be around for a long time – When T asked me again if I’m old and if I will die soon, I told him that I’m older than him but I am still young and that the hubby and I plan to live until we are 100. T knows that is a big number and I could tell that he felt comforted.
Didn’t use religious symbols – I know many families use religious symbolism as a means of comforting children (e.g. Grandpa is now in heaven). Religion is something we are not introducing to T at this point. But it’s certainly something that can help comfort children and I respect that.
Now that I’ve had distance and reflection about this, I feel better. I’m not overly concerned at this point that T has brought up this topic. It seems like an age appropriate thing to ask.
In some strange way, I find it interesting that T is thinking about such deeper topics. It shows me that things are moving and maturing in that little head of his.
Hopefully this topic doesn’t consume too much of his thoughts. And if it does, we’re ready to hear him out and to respond in a way that hopefully reframes it in a positive and reassuring way.
We first checked out the marina and the very cool houseboats. I can only imagine how calming it must be to live not just live by the the water but on it too!
Then we made our way to the beach.
As we walked, the hubby reminded me that the last outing we did before T came into our lives was a Spring hike on a Saturday afternoon in April 2016 at the Bluffs.
Little did we know that four days later, we would get an unexpected call from our social worker that we had been matched with T!
T is always in his element in nature, because it is wide open and he can run and be carefree.
Sand? Lots and lots of sand? Even better!
It was nice watching the hubby and T have fun together.
It’s always fun to let T and his curiosity lead the way.
On the walk back to the car, the hubby spotted a big floating dead fish. So naturally, T wanted to take a closer look and throw rocks at it.
It was almost 5 pm when we got to the car and the sun was setting.
We were all starving and the hubby and I were craving Taco Bell.
T, who is a stubbornly fussy eater, said he wanted to try a soft chicken taco. He had never expressed any interest in tacos before, so we quickly jumped at the opportunity.
And he loved it! So it’s now something we can add to the handful of things he will eat! Fast food be damned, there’s meat and vegetables in the taco, so more tacos are in his future!
We enjoyed the tacos with a gorgeous cotton candy sunset outside our dining room window.
Earlier this Sunday morning, T and I went back for more nature fun at the Bluffs.
We both got up fairly early and after breakfast, he said he wanted to go back.
The weather was so beautiful and felt so fleeting that I didn’t second guess my impulse to jump on the offer, as tired and unwashed as I was!
T found an abandoned dig site at the beach and quickly claimed it as his own.
And he dug and dug and dug.
As a kid with sensory seeking behaviour, this was a type of calming activity he thrives in and enjoys.
I switched back and forth from watching him and blankly staring down the long path of the beach and enjoying the soothing sound of the water.
After an hour, he got bored and we walked the winding path of the beach’s edge, skirting the water coming and in out of the beach.
On the way back, we took the narrow and wooded path away from the water.
I had never explored this path before and only stumbled upon it by accident today, because I had to take T to pee in the bushes.
I was sure glad we found it as it gave another perspective on this beautiful place.
As always, I let T lead the way. He wanted to follow a small creek because he was curious where the water originated from.
We kept walking down the path and discovered wonderful close up views of the jagged Bluffs and cliffs.
T kept himself entertained with natural artifacts he found and picked up along the path.
Nature is a go-to place for me to recharge.
Things always feel calmer, clearer and more collected after time spent outdoors with sun, sand and water. And today was no different.
I’m glad we can continue to share this love with T and the hubby and I hope that it will be a way for T to recharge himself as he gets older.
Summers fly, winters walk.
I’m thankful we got to enjoy this last burst of summer.
While we are always wanting more of it, this weekend was a nice way to celebrate if this was indeed the last of this weather for the year.
Last Friday, we were notified by T’s child and youth worker that a parent had complained to the teacher, specifically about T not giving a classmate personal space.
It bummed me out, as I recalled unpleasant memories of T’s Montessori pre-school and when the board booted him out after a parent complained about his behaviour to the owner.
Thankfully, things are different at his new school – a public school – because we have a wonderful team of advocates, including his principal, teachers and child and youth worker.
Part of this support includes the development and implementation of an Individualized Education Plan (IEP).
As described by our school board, an IEP is “a written plan that describes special education programs and/or services for a student. It is based on a student’s profile of strengths and needs.”
According to the US Department of Education, “the IEP creates an opportunity for teachers, parents, school administrators, related services personnel, and students (when appropriate) to work together to improve educational results for children with disabilities.”
The school offered us the option to participate in the development of the IEP and we gladly accepted. The school asked who else we wanted to be consulted and we asked for T’s behavioural therapist to be included, because she has valuable insights from working with T.
During the consultation with T’s teacher, child and youth worker, and principal, we talked about T’s strengths, areas of needs and our goals for him.
We identified the following as T’s strengths:
Visual learner
Hands-On learner
Independence on preferred tasks
Gross motor skills
Rote learner
Motivation through special interests
We identified the following as T’s areas of need:
Behaviour management
Self regulation
Transitions
Social skills
Communication
Attention and focus
Fine motor skills
We conveyed our goals in two broad categories:
Academic – e.g. building pre-reading, pre-math, handwriting skills
Social – As outlined in the list of areas of need above
T’s teacher provided us the draft IEP for review end of last week and it nicely captured what we discussed.
An IEP also outlines the school’s goals for T, along with the teaching strategies and their assessment method to gauge T’s progress.
I like that each goal is realistic and measurable. For example, “T will improve his ability to follow class rules without adult support at least 60% of the time.”
We were pleased with the IEP and signed off on it. We look forward to checking in on T’s progress with his teacher throughout the year.
I’ve read stories of special needs parents who have found it to be a struggle to get an IEP or for it to be developed and implemented.
So we consider ourselves to be blessed to have amazing people on Team T, as we affectionately refer to them as.
We are also thankful for T’s amazing child and youth worker.
We only have her support this year, so we hope for T to get as much mileage from her one-on-one support as possible. And we are already seeing a difference and growth in him.
She uses a daily log book to document and to provide us with updates on T’s progress.
She lists three daily goals for T and she reports how he does with them; a check mark for when he meets these goals at the various daily activities and an X for when he doesn’t meet them.
The hubby and I appreciate her concise, clear and honest feedback. I like that she doesn’t downplay T’s challenging moments, as it doesn’t do anyone, especially T, any good.
What we feel especially thankful for is that she is a champion for T. She addresses his challenging behaviour, but she also celebrates his daily victories and she sees the big picture – which is all about the incremental gains.
When we reached out to her about the parent who complained to T, she was reassuring in her response and kept us focused on the larger picture. Really, we couldn’t ask for more.
If it’s anything the last few years of school has taught us is that it will be a winding road with T.
But we remind ourselves that we are covering new ground every day – no matter how incremental – and leaving a paved road of lessons learned and mostly positive memories behind us.
There is always a reason to stay the course and look ahead with optimism.
And with T’s IEP, we have an additional tool – a roadmap – for the school year ahead.
Halloween is very different this year but we wanted to make sure we celebrated one of T’s favourite days.
So we created a surprise Sugary Scavenger Hunt around the house, including turning our family room into a haunted surprise.
The fake cobwebs and spiders blended in nicely with the real ones!
As soon as it turned dark outside, we began our hunt.
Chocolates and candy were placed all over the house and T had a flashlight in one hand and a bucket in the other as he explored the house with the hubby and I.
On a regular day, our 50+ year old fixer upper home looks like someone got murdered in it. So it wasn’t hard to make it spooky for Halloween. I mean, missing kitchen cupboard doors, hello!
Our wonderful neighbour gifted T a basket of treats which we put as the final surprise – next to a spooky white lady skull with glowing red eyes – in our basement crawl space.
T bravely – kinda – crawled under to retrieve his bounty.
T knew something was up all day because we were working on it but he didn’t know the details other than he had to wait until it got dark outside.
I took him for a late afternoon walk so the hubby could finish the final details of our surprise.
After the scavenger hunt, T told us in the most heartfelt way, “Thank you for decorating the house. I really appreciated it. I love Halloween.”
And he gave us both a big long hug and told us, “I love my parents.”
It was one of the rare handful of times that he expressed such a genuine and so well articulated outpouring of love.
And it was honestly all the sugary sweetness we needed to hear during these trying times!
In more recent weeks, since school started, other faces have come into the mix.
One regular group is a mother and her two boys, aged 7 and 5. The younger boy is T’s age but is a fair bit shorter. The older boy, as the mother was quick to share, is autistic.
T and the younger boy have come to play very well together. I enjoy watching them chase each other and laugh together.
I get amused when they get annoyed at each other for not sharing the rocking horse. Or when the boy hits T. To be frank, it’s nice to see T get a dose of his medicine!
While T and the boy play, the older brother is off on his own exploring the park. The mother and I take the time to chat.
I’ve been forthcoming about T’s special needs, about his at-risk FASD prognosis. I’m also open about his adoption. In turn, the mother shares her own challenges and learnings with raising a boy with autism.
Going for a walk at the Port Union Waterfront this past weekend.
There have also been other special needs parents in the playground – although I’ve only seen them all once so far.
A few weeks ago, T was playing with the older kids when two other older siblings – Grades 1 and 3 – asked to join them.
As they played, I sat on a park bench and started to chat up these siblings’ mother.
She was quick to point out that both her children have learning disabilities. I, in turn, shared T’s story. She then said that she adopted both children and is a single mom and that she also thinks her kids may have FASD although the birth mother denied drinking during pregnancy.
It was at that moment that I remember a conversation with the school principal when we were registering T for the after school program.
I asked the principal if he had any experience with kids with FASD and he spoke about a sibling pair.
I had no doubt that I was speaking with the mother of said sibling pair.
It was so refreshing to talk openly with another parent who understands the nuance and the complexity of your own parenting experience.
She spoke about her children’s difficulties with school, her experience with medicating her two children, and her challenges as a single parent.
It was sobering to hear her story, because it made me realize that while the hubby and I had our challenges, we have it fairly good in comparison.
That was the first and only time that I saw that mother. I hope to see her again one day.
Going for a walk at the Port Union Waterfront this past weekend.
Speaking with these two mothers made me realize one common characteristic of special needs parents – and I see this in myself – how quick we are to explain our children’s behaviour to others, almost as if we feel self conscious or need to rationalize them.
I observed this in another young couple I saw at the playground about three weeks ago.
They were with their two young toddler boys. T was circling around the older one, making his dinosaur noises, and the boy started shouting loud noises back at T.
I laughed and told T, “Don’t make such loud noises. You’re going to scare the boy.”
Then the dad said with a laugh, “My son also has autism.”
That comment kind of caught me off guard but I appreciated his candor. I didn’t react or try to correct his assumption about T but just went along with it.
I shared these stories with the mother of two boys who I see regularly.
I joked that the playground is almost like an unofficial special needs parents conference and she said all of us parents are just trying to burn our children’s energy before bedtime.
And she has a point!
This past Thursday, we had an unexpected visitor at the playground: a beautiful fox.
All the kids got excited and started chasing this poor fox.
I had to be the boring parent and run interference when they cornered it and started stepping closer to the wild animal.
All the commotion and running was not for naught: T passed out fairly quickly that evening!
My Life With T 