Playing Sidekick to My Incredible Hulk

Our T has found a kindred spirit in a superhero with anger issues and the irony is not lost on me. Last week’s loan from the school library was a non-fiction book featuring the green Marvel superhero and we enjoyed reading it over several nights. I love that reading comics or books inspired by comicsContinue reading “Playing Sidekick to My Incredible Hulk”

Hitting the Reset Button

During a work call, I got a call from T’s daycare teacher. She was not her usual calm self. She said an older student had ran off the bus during drop off and pushed T against a wall. She had to shield him from further harm. A few hours earlier, the hubby and I receivedContinue reading “Hitting the Reset Button”

Retracing Our Footprints

I spent last weekend filing documents that have piled up over five years. Being a parent is a full time job on top of a job. Being a special needs parent is like having an extra job on top of parenting – managing school and service appointments, taking your child to appointments, keeping track ofContinue reading “Retracing Our Footprints”

Escape Room

“What am I escaping from?” asked the exasperated dad after the resort staff asked if he wanted to try their Escape Room game. The staff asked another dad, walking quickly with a kid in tow and he asked, “Do I get to escape from this?” He looked at me with T in one of hisContinue reading “Escape Room”

Waves

“I get back up and I do it again. I get back up and I do it again…” One of my wishes with our vacation is to overfill T’s bucket with happy memories – so he has them during grayer days. I loved watching T play at the beach, with its soft white powder andContinue reading “Waves”

Helping Kids Navigate Difficult Change

Change is hard for kids. It was heart wrenching to see T process an unexpected change this week. Change is harder for kids such as T. If you hang out with the hubby and I, you’ll notice we give T ample warnings – 10, 5, 1 minutes before we move to the next activity, especiallyContinue reading “Helping Kids Navigate Difficult Change”

The Diagnosis

After 5.5 years, we’ve answered a longstanding question about our son’s life and then uncovered more questions. When T was 18 months old, he received a prognosis of at-risk Fetal Alcohol Spectrum Disorder (FASD). It’s been quite the journey since as the hubby, T and I experienced the highs and lows of life with aContinue reading “The Diagnosis”

“At least he said, ‘Please’!”

Be clear about what you ask for. The photo above was taken when T was 1 and attending an Early Years program, part of our routine to help develop his speech. He’s come a long way since! These days, I appreciate that T verbalizes his feelings, rather than internalizes things. He’ll often let you knowContinue reading ““At least he said, ‘Please’!””

“You’re Frozen When Your Heart’s Not Open”

When faced with fear and worry of the unknown, the natural response is to numb and protect your heart from potential pain. I remember the early days of reading up about FASD and randomly bursting into tears while watching a toddler T sit or play. It felt overwhelming, stressful and lonely. But the heart hasContinue reading ““You’re Frozen When Your Heart’s Not Open””

Resolutions

Through virtual schooling, T learned about setting goals for the New Year. The related assignment is the last thing we had to catch up on and complete this weekend before we return to in-person learning this coming week. I often write about how we struggle with T to sit still and concentrate long enough toContinue reading “Resolutions”

Little Community Helper

Kids can be self centered and I often think about how to teach my little T about good deeds. Last fall, we ordered a collection of the first six Clifford books, because T was interested in the adventures of the big red dog. One of the first stories was “Clifford’s Good Deeds.” The story madeContinue reading “Little Community Helper”

Touchscreen Generation

Nothing ages you like teaching your Generation Alpha son how to use a computer mouse. Our 6-year-old T was born into a world that already had Instagram, wifi, and iPhones. I remember being once amused when he was three years old and trying to use the TV by touching the screen instead of using theContinue reading “Touchscreen Generation”

Walking on Thin Ice

My six-year-old recently asked me what the word “pressure” means? Since we watched Disney’s “Encanto,” he’s been humming his favourite moment, when Luisa sings the song “Surface Pressure.” We had the song on repeat while driving. I told T that when you feel pressure, you feel very worried you might not do a good job.Continue reading “Walking on Thin Ice”

Brittle and Faith

“There is a crack in everything. That’s how the light gets in.” This is an excerpt from Leonard Cohen’s song “Anthem” that I saw posted on Instagram. After a year of best laid plans falling apart, we began 2022 by making something just to break it: peanut brittle, using this easy recipe from In Diane’sContinue reading “Brittle and Faith”

Motivation

Fans of long-running reality show Survivor will be familiar with the term “dig deep.” It’s what host Jeff Probst says to motivate contestants to tap into their inner strength to get through a physically-grueling challenge. The last few weeks have been very challenging with T at home and school. We’re not sure if it’s theContinue reading “Motivation”

Tell the Truth

If the truth sets us free, would you still tell it if it means upsetting someone? Several years ago, I was on a crowded train and the two women standing next to me were talking about drinking and pregnancy. One of them said she knows doctors who’ve said it is ok to drink during pregnancyContinue reading “Tell the Truth”

Losing Like Halle Berry

Having a sense of humour about when things do not go as planned is generally one of my instinctual responses in life. Dealing with loss and feeling like you’re failing is part of being a special needs parent. In the last few weeks, it’s been harder to find levity during the challenging moments. We’ve beenContinue reading “Losing Like Halle Berry”

Circles

Circles appear as symbols of power, movement, change and balance in our lives. Some see circles as a symbol for the wholeness of self, timelessness, infinity and God itself. Circles represent the passage of time. A year is a full orbit of Earth around the sun; hours pass in a circular motion around a clock.Continue reading “Circles”

Light Up the Dark

The colorful ghosts of Christmas past emerged this weekend, sparking wishes for future memories. After I did my Friday night groceries, I returned home to Christmas cheer thanks to T and the hubby. It’s only mid November, but it’s family tradition to put up the tree, decorations and lights after Remembrance Day. Christmas is withoutContinue reading “Light Up the Dark”

Golden Hour

Nature reminds us that magic exists before and right after the darkness. Golden hour refers to the hour after sunrise and before sunset when the sun is softer and redder compared to when it’s higher in the sky. Also called magic hour, it is a photographer and filmmaker’s dream. I first noticed this in aContinue reading “Golden Hour”