Great Expectations

As a special needs parent, I often struggle with the difference between adjusting and lowering my expectations. This is forefront in my mind now that T, a kid with great potential and a prognosis of at-risk FASD, is in Grade 1. School learning is now more formal and less play based. Expectations have gone upContinue reading “Great Expectations”

Honey Harbour

If it’s bitter at the start, it’s sweeter in the end. I reflected on this during a two hour drive home from Honey Harbour, a scenic set of islands along Georgian Bay, where the hubby, T and I spent Saturday with my aunt and two cousins. We woke up early to ensure we arrived atContinue reading “Honey Harbour”

Silenzio, Bruno

What does your self talk sound like? How do you silence your negative internal dialogue? “Silenzio, Bruno,” is a line from the animated film, Luca. It translates from Italian to “Be quiet, Bruno” or “Shut up.” We’re gonna go with the PG translation, thank you very much! The two boy characters, who are a weeContinue reading “Silenzio, Bruno”

Trying Differently Rather Than Harder

On FASD Day, I’d like to share an important lesson I continue to learn as a special needs parent. FASD Day is observed annually on September 9 and has grown into a month-long event: FASD Month in September. FASD stands for fetal alcohol spectrum disorder, a lifelong disability that affects the brain and body ofContinue reading “Trying Differently Rather Than Harder”

Explaining Evil to Young Kids

During our recent roadtrip, T came across dozens of shoes left behind on a set of stairs. The stairs belonged to the Town Hall of Gananoque, where we spent a nice weekend exploring the Thousand Islands. Across Canada, citizens gathered and left shoes behind at government sites in recognition of the discovery of several hundredContinue reading “Explaining Evil to Young Kids”

Candid Conversation: Raising Jess and Finding Hope

It’s inspiring and comforting to connect with other parents on the special needs journey. Vickie Rubin is the author of Vickie’s Views, a heartwarming and inspiring blog about raising her daughter Jess. Vickie has a background in early childhood education and special education. This month, she releases her memoir Raising Jess: A Story of Hope.Continue reading “Candid Conversation: Raising Jess and Finding Hope”

Graduation Day

Two years of growth, unexpected challenges, laughter and tears culminated in a virtual kindergarten graduation. I can’t thank T’s teachers enough for hosting a virtual ceremony this morning during the pandemic to celebrate this important milestone. They provided in advance a graduation kit – diploma, cardboard hat, fun sunglasses – to have ready for thisContinue reading “Graduation Day”

“When I Feel Angry”

Team T have been trying different strategies to help our sweet boy process his emotions. Emotional regulation is often a challenge for children with T’s prognosis – at-risk FASD. We experience a full spectrum of emotions, from happy, sweet, caring to explosive moments. The hardest moments are those when he is set off in theContinue reading ““When I Feel Angry””

Three Wishes

If a genie gave us an opportunity, would we wish away our child’s invisible disability? I thought about this question all weekend after T and I watched Disney’s Aladdin. On Saturday morning, with a bowl of popcorn, we snuggled on the couch and watched the movie T had recently enjoyed in class. I chuckled whenContinue reading “Three Wishes”