Humans, like other animals, naturally seek and thrive through social connection. A flock of birds, a school of fish, a pack of wolves, and so on – we’re created to be social beings born into a family and socialized into communities. I reflected on this during a brisk, late afternoon, bike ride with T toContinue reading “Birds of a Feather”
Category Archives: Resiliency
A Strong Sense of Justice
At a parent-teacher interview a few years ago, T’s Grade 1 teacher said T has a strong sense of justice. Despite the challenges we navigate with T, his general sense of right and wrong, and doing the right thing and speaking up when he feels he or others are wronged, gives us hope he willContinue reading “A Strong Sense of Justice”
Regrouping: Finding Resilience in the Caregiving Journey
A subtraction worksheet drove me into a meltdown with our neurodiverse 10-year-old. I had an early start to a typical Tuesday work day, followed by a two-hour evening meeting of a Family Advisory Council that I volunteer with. After the meeting, I was hungry, brain-dead and just wanted to crawl into bed. But math homeworkContinue reading “Regrouping: Finding Resilience in the Caregiving Journey”
Story of My Life
I made it home just in time for a special unexpected bedtime routine with T. With thanks to the hubby, I had a rare weeknight out to support colleagues at an event. As I texted the hubby on the subway ride home, he let me know it was a rougher night; T was very disregulatedContinue reading “Story of My Life”
Running for Life: “I’m Not a Quitter”
Thanksgiving is quieter and simpler this year. Two years ago, I hosted dinner for Ma and my sister; the latter had just moved in with us after receiving her terminal cancer diagnosis. Last year, Ma was at the Philippines for an extended visit and I don’t remember if we even did anything for Thanksgiving. SoContinue reading “Running for Life: “I’m Not a Quitter””
Drumming Heartbeats for FASD Awareness Day
September 9 is International FASD Awareness Day. Fetal alcohol spectrum disorder describes the impacts on the brain and body of someone exposed to alcohol in the womb. On Sunday, we participated in a community event at St James Park in downtown Toronto organized by Surrey Place, the wonderful organization that has supported T since heContinue reading “Drumming Heartbeats for FASD Awareness Day”
Riding the Rollercoaster of Life
The build up often outlasts the thrill themselves, but boy, are they worth it sometimes. Our annual Labour Day weekend camping plans were thwarted by bad weather and we kept it local and chill instead. We took T to Canada’s Wonderland on Saturday, a beautiful day, our first visit in two years. Going in, weContinue reading “Riding the Rollercoaster of Life”
The Tumbles and Polish of Sea Glass
Picking up treasures on pebbled shores reflected the journey through life’s imperfections. One highlight from our visit to T’s grandparents in New Brunswick was picking sea glass. Wonderopolis describes sea glass as pieces of glass smoothed over time by the tumbling of water, waves, and sand. As glass soak in salt water and get tossed againstContinue reading “The Tumbles and Polish of Sea Glass”
Born This Way
We kicked off T’s summer by marching in Canada’s largest Pride parade and championed freedom to information. I have a leadership role on my work’s Pride employee group and was part of the team that organized our march. For the second year, we chose the theme of intellectual freedom and reused signs from last year,Continue reading “Born This Way”
Going Off the Deep End
T loses control of his emotions on a regular basis, but today, it was for the best and proudest reasons. The outdoor city pool opened this weekend and it’s a summer tradition for us to spend time there. It’s a small plain pool but it is special place for us, because it saved our pandemicContinue reading “Going Off the Deep End”
Futures Planning for the Neurodiverse Child
One thing that keeps me up as a special needs parent is thinking about our child’s future. My workplace is developing its next multi-year strategic plan. Participating in the process made me think about T’s next few years. Any special needs parent will tell you we just want to make it to the end ofContinue reading “Futures Planning for the Neurodiverse Child”
Keep the Faith
In 2015, the hubby and I finished our South America trip at Rio de Janeiro. It was our last solo trip before T unexpectedly came into our lives. I revisited this special city last night when Madonna completed her Celebration Tour on Copacabana Beach to a record 2 million people. We watched her show inContinue reading “Keep the Faith”
Sinking Ships, Rising Hearts
The heart does go on and on. T’s latest obsession is the Titanic, quite the step up from Paw Patrol! This was likely inspired from YouTube, as he spends lots of time watching videos about the Titanic and other famous shipwrecks. He loves to draw pictures and pretend play with great imagination about the doomedContinue reading “Sinking Ships, Rising Hearts”
Nature is Healing for Neurodiverse Kids
A beautiful sunny t-shirt weather Spring Sunday gave T and I the recharge we needed. After breakfast, we practiced reading two chapters in his latest book then headed to one of our favourite nature spots: Rouge Park. I feel blessed for this urban oasis near our home. I appreciate the government recently adding a boardwalkContinue reading “Nature is Healing for Neurodiverse Kids”
Down into the Depths
In your lowest moments, you find yourself again. We enjoyed a cave exploration excursion during our March Break family trip to Mexico. Our first activity was to rappel down 7 storeys into a small cave. T went first. As he was lowered by the guide, down a small hole that quickly opened widely, he saidContinue reading “Down into the Depths”
Angels in the Infield
During school lunch a few weeks ago, T proclaimed to his class he was refunding his parents. His CYW recounted to us with amusement, via text message, that T ranted out loud that he had told Daddy (the hubby) many times that he didn’t want meatballs for lunch and still got them. Due to thisContinue reading “Angels in the Infield”
The Darkest Dark
We remind our little guy that he is stronger and braver than the monsters in his head. During a recent Sunday morning, around 1:30, I was woken up by the hubby having a fit. T had turned on all the lights in the house, downstairs included, and was up playing with his toys – becauseContinue reading “The Darkest Dark”
The Writing Parlour
Helping my third grader build writing skills is like making pizza; layer one ingredient on at a time. The process sometimes feels like a struggle with a disability like FASD layered on top – but it nonetheless feels like I’m watching something special grow from infancy. It brings back fond memories of the early days,Continue reading “The Writing Parlour”
Why Stories Matter
Stories and personal testimony can inform, inspire and be a lifeline to someone. December 1 marks the fourth anniversary of this blog and my first post, introducing T’s prognosis and our family. I started my blog as a way to process my thoughts on the FASD parenting journey and to raise awareness and advocate forContinue reading “Why Stories Matter”
Love and Karma
The energy we send into the universe is the energy we invite into our lives. I found this belief challenged the past few weeks, because of T’s chaos – meltdowns, foul language, rude attitude, defiant behaviour at school. It was draining – and at one point, I told the hubby I did not have theContinue reading “Love and Karma”
My Life With T 