On the last Sunday morning of September, T woke up excited for his first soccer lesson. T loves soccer and his CYW suggested enrolling him into lessons. Sports is often therapeutic for neurodiverse kids, like T who has FASD and ADHD, to help burn off energy and to regulate their mood. I also see socialContinue reading “Sports as Social Medicine for Neurodiverse Kids”
Category Archives: growth mindset
The Stories We Tell
Stories inform, inspire, and illuminate life’s complexities and contradictions. Earlier this week, our team at work participated together in a learning and reflection activity to pay respect to National Truth and Reconciliation Day, which is observed on September 30. We watched a short documentary that featured interviews with survivors of the residential school system. MyContinue reading “The Stories We Tell”
“Up My Butt!”
This is a wholesome and positive post, I promise. Two weeks into the new school year 4, T and our family are settling into more structured days. Some good news, T still has his Child and Youth Worker support for academic subjects. It is very rare for a 4th grader to have this support andContinue reading ““Up My Butt!””
The Boy with the Big Outdoor Voice
“Oh my God, when is that baby going to stop crying,” our 9-year-old said loudly during our recent flight home from Banff. I was horrified and amused. The woman behind us burst out laughing. Such is the life with T, who is never shy to speak his mind, even and especially when things are bestContinue reading “The Boy with the Big Outdoor Voice”
Riding the Rollercoaster of Life
The build up often outlasts the thrill themselves, but boy, are they worth it sometimes. Our annual Labour Day weekend camping plans were thwarted by bad weather and we kept it local and chill instead. We took T to Canada’s Wonderland on Saturday, a beautiful day, our first visit in two years. Going in, weContinue reading “Riding the Rollercoaster of Life”
The Tumbles and Polish of Sea Glass
Picking up treasures on pebbled shores reflected the journey through life’s imperfections. One highlight from our visit to T’s grandparents in New Brunswick was picking sea glass. Wonderopolis describes sea glass as pieces of glass smoothed over time by the tumbling of water, waves, and sand. As glass soak in salt water and get tossed againstContinue reading “The Tumbles and Polish of Sea Glass”
Born This Way
We kicked off T’s summer by marching in Canada’s largest Pride parade and championed freedom to information. I have a leadership role on my work’s Pride employee group and was part of the team that organized our march. For the second year, we chose the theme of intellectual freedom and reused signs from last year,Continue reading “Born This Way”
Goal Posts
Grade 3 is in the history books and we’re kicking summer off with soccer. T has recently developed a love for soccer. Thanks to his CYW, he had his own soccer ball and played soccer at recess with a group of boys. There were bumps along the way, as T gets upset when he doesn’tContinue reading “Goal Posts”
Going Off the Deep End
T loses control of his emotions on a regular basis, but today, it was for the best and proudest reasons. The outdoor city pool opened this weekend and it’s a summer tradition for us to spend time there. It’s a small plain pool but it is special place for us, because it saved our pandemicContinue reading “Going Off the Deep End”
Futures Planning for the Neurodiverse Child
One thing that keeps me up as a special needs parent is thinking about our child’s future. My workplace is developing its next multi-year strategic plan. Participating in the process made me think about T’s next few years. Any special needs parent will tell you we just want to make it to the end ofContinue reading “Futures Planning for the Neurodiverse Child”
The Joy in the Meander
Slow down, take the detours, be open to the unexpected, stay present, soak in the moment. We all end up at a finish line, so what’s the rush? It’s a valuable lesson I’ve learned as T’s parent. Our family recently helped celebrate the 18th birthday of a friend’s son. It seemed like yesterday that heContinue reading “The Joy in the Meander”
Step with the Best Foot Forward
A painful truth about being a parent of a child with FASD is the world often sees them at their worst. A parent shared this, between tears, during a recent weekly virtual FASD caregivers group and I wanted to hug her because I felt her heartache. I then thought about Mothers Day lunch with familyContinue reading “Step with the Best Foot Forward”
Keep the Faith
In 2015, the hubby and I finished our South America trip at Rio de Janeiro. It was our last solo trip before T unexpectedly came into our lives. I revisited this special city last night when Madonna completed her Celebration Tour on Copacabana Beach to a record 2 million people. We watched her show inContinue reading “Keep the Faith”
Sinking Ships, Rising Hearts
The heart does go on and on. T’s latest obsession is the Titanic, quite the step up from Paw Patrol! This was likely inspired from YouTube, as he spends lots of time watching videos about the Titanic and other famous shipwrecks. He loves to draw pictures and pretend play with great imagination about the doomedContinue reading “Sinking Ships, Rising Hearts”
Open to Feedback
Being able to receive and apply feedback, as hard as it can be to hear sometimes, is key to growth. In February, halfway past the Grade 3 school year, the hubby and I had our teacher conference with T’s teacher, CYW and the school’s special education coordinator. We discussed T’s areas for improvement: reading, writingContinue reading “Open to Feedback”
Turbulence
An overzealous adult crossed the line with our neurodiverse son and awoke the Papa Bear in me. While waiting at the airport for our early morning flight home after our March Break trip a few weeks ago, T was disregulated. He didn’t get a lot of sleep and he was short tempered, hyperactive and mouthy.Continue reading “Turbulence”
Angels in the Infield
During school lunch a few weeks ago, T proclaimed to his class he was refunding his parents. His CYW recounted to us with amusement, via text message, that T ranted out loud that he had told Daddy (the hubby) many times that he didn’t want meatballs for lunch and still got them. Due to thisContinue reading “Angels in the Infield”
The Darkest Dark
We remind our little guy that he is stronger and braver than the monsters in his head. During a recent Sunday morning, around 1:30, I was woken up by the hubby having a fit. T had turned on all the lights in the house, downstairs included, and was up playing with his toys – becauseContinue reading “The Darkest Dark”
The Writing Parlour
Helping my third grader build writing skills is like making pizza; layer one ingredient on at a time. The process sometimes feels like a struggle with a disability like FASD layered on top – but it nonetheless feels like I’m watching something special grow from infancy. It brings back fond memories of the early days,Continue reading “The Writing Parlour”
Why Stories Matter
Stories and personal testimony can inform, inspire and be a lifeline to someone. December 1 marks the fourth anniversary of this blog and my first post, introducing T’s prognosis and our family. I started my blog as a way to process my thoughts on the FASD parenting journey and to raise awareness and advocate forContinue reading “Why Stories Matter”
My Life With T 