Why Stories Matter

Stories and personal testimony can inform, inspire and be a lifeline to someone. December 1 marks the fourth anniversary of this blog and my first post, introducing T’s prognosis and our family. I started my blog as a way to process my thoughts on the FASD parenting journey and to raise awareness and advocate forContinue reading “Why Stories Matter”

Padam Padam

Life begins at 40 – and what makes your heart beat with new purpose? Growing up, 40 seemed ancient and yet, I still feel like a kid in a candy store when I view and think about certain things in life. Being a dad keeps my mind young and ages my body in triple time.Continue reading “Padam Padam”

Watermelon Sugar

Do you run towards or flee from inevitable sunsets? September 9 is FASD Day, commemorated during FASD Awareness Month in September. September 9 symbolizes the ninth month of pregnancy and this day helps raise awareness about Fetal Alcohol Spectrum Disorder and the experiences of individuals with FASD. People are encouraged to wear red shoes, anContinue reading “Watermelon Sugar”

“La Vie Il Faut La Vivre”

Life must be lived. The words scribbled in French on the railing looking out at the lake. It was the final Saturday of summer break, four days before T’s second grade journey began. We were at beautiful Presqu’ile Provincial Park, located a little over an hour from the City. We left the day before, rightContinue reading ““La Vie Il Faut La Vivre””

The Dance of Life

Music can be such a revelation. Every August 16, we celebrate Queen Madonna’s birthday; she turned 64 on Tuesday. I discovered her music in high school in ‘98 and continue to admire her tireless work ethic, tenacity, fearlessness, and advocacy. Just as she redefined music, it’s interesting to watch her age on her own terms,Continue reading “The Dance of Life”

Finding the Calm in the Storm of FASD Parenting

Any parent of a child with FASD will tell you that “calm” is like a mythical unicorn. A few weeks ago, a Saturday morning in the playground started off well enough. Then a little girl with her grandmother came over to the slide and T didn’t want to share it. I reminded T the slideContinue reading “Finding the Calm in the Storm of FASD Parenting”

“Never Let the Fire Inside You Leave.”

Fire has long served as a symbol of creation, destruction and rebirth. T’s latest song obsession is “Iconic,” from Madonna’s 2015 album “Rebel Heart.” Every August 16, M’s birthday, we listen to her songs. This triphop autotune-laced song appeals to T, because he thinks a robot is singing. If you try and fail, get upContinue reading ““Never Let the Fire Inside You Leave.””