Looking for info related to parenting a child with FASD? Here are a few resources that have been helpful to us.
This is by no means a comprehensive list. Suggestions are welcomed; please email mylovablepest@gmail.com.
You can also follow @my.life.with.t on Instagram.
FASD Organizations
Canada
Canada FASD Research Network – Canada’s first comprehensive national Fetal Alcohol Spectrum Disorder (FASD) research network and a collaborative, interdisciplinary research network, with collaborators, researchers and partners across the nation.
FASD Ottawa – A trusted source of resources, research, events & support groups related to Fetal Alcohol Spectrum Disorder.
Surrey Place – Based in Ontario, Canada, a wonderful organization that provides support services for individuals living with developmental disabilities, autism spectrum disorder and visual impairments.
United States
National Organization on Fetal Alcohol Syndrome – US-based non-profit public health charitable organization focused on the issue of fetal alcohol syndrome and fetal alcohol spectrum disorders.
Australia
NOFASD Australia – Funded by the Australian government through the Department of Health.
Support Groups and Resources
Cognitive Supports with Nate Sheets – Resource page led by Nate Sheets, who specializes in FASD, trauma, and cognitive skills.
Dan Dubovsky Lectures – A series of YouTube videos of talks by FASD Specialist Dan Dubovsky, on topics ranging from school success, strategies to improving outcomes and mental health.
Disability Advice – A comprehensive how-to guide, including accessing educational resources, and exploring financial support, to help empower parents with the knowledge they need to support their children in their developmental journey.
The Exceptional Caregivers Life – A new podcast by Surrey Place’s Family Advisory Council featuring stories of successes and challenges – of finding joy, hope, humour, respite and community to keep going on a journey that is often hard, exhausting and isolating.
FASD Caregiver Success Support Group – A wonderful and private Facebook group for caregivers of individuals with FASD.
FASD Hope Podcast – A podcast series about FASD, through the lens of parent advocates with over twenty years of lived experience.
FASD Success Show – A wonderful, informative and at times uplifting podcast by FASD expert Jeff Noble.
Myles Himmelreich – An inspiring individual with FASD who shares his story and advocacy work as a motivational speaker.
Parents Helping Parents FASD Ontario – A parent run confidential phone line supporting parents in the Ontario, Canada area.
Patricia Kasper – Kasper’s FASD Life Coaching & Training brings awareness of the impacts of prenatal alcohol exposure to communities.
Red Shoes Rock – Founded by RJ Formanek, an inspiring individual with FASD, this international awareness campaign gives voice and support to those affected by prenatal alcohol exposure.
Supporting Your Child With FASD – A video recording of a 2-hour workshop for parents and caregivers.
Trying Differently Rather than Harder – An insightful book by Diane Malbin that provides wonderful tips for caregivers on how to adjust their approach to parenting individuals with FASD.
What Parents and Caregivers Need to Know About FASD – In-Depth Resource with Strategies Grouped by Specific Needs.
Wired Differently – Certified life coach, FASD self advocate and mentor Gilbert Spencer helps parents understand and better support their kids with FASD, look after themselves and cope with the challenges of raising neurodivergent children.
Parenting Blogs
Top 45 Disabled and Special Needs Child Parenting Blogs – An eclectic list of blogs covering a range of lived experiences curated by Feedspot.
Top 20 LGBT Parenting Blogs and Websites – Curated by Feedspot from thousands of blogs on the web.
Adopting Faith: A Father’s Unconditional Love – A gay dad on raising his family of kids with FASD.
Autism in Our Nest – A loving family; autism is just a part of who they are.
Bereavement Single Parent Dad – A dad trying to cope with the loss of his partner and becoming a single parent.
Chen Song Ping – A mother based in Malaysia who blogs about many topics, including raising her son.
HealthLine Best FASD Blogs of 2017 – A list of FASD blog recommendations.
Love That Max – A blog about a boy that kicks butt.
Our Sacred Breath – Finding calm in the chaos of FASD. The author also runs a fantastic Facebook group of the same name.
Quirking It – FASD from the perspective of an adult with lived experience.
Stay Positive, It’s Autism – A mom raising autism and neurotypical.
Vickie’s Views – Heartwarming, Inspirational, and Funny. Stories about everyday life, family, marriage, and raising a child with a disability.
Other Related Resources
The Adventure Team – A diverse and committed team of passionate role models and advocates of the outdoors; holding experience in mentoring youth on the autism spectrum, have mental illness and other disabilities.
My Life With T 